@Dolphin, thanks for wading through this. A few thoughts: Jason is resisting the notion that counting the number of symptoms can be used as an...
Thanks, Amy. You've done so much for our community! <3
He claims it's 1,000 per day in his pamphlet. Contradicting himself again...
And here he talks about the fact 'not one' definition of ME that he's read mentions temperature dysregulation (despite claiming he's read two...
Just as an aside, you can find Bloom's pamphlet here (PDF). There are some contradictions (notably, amitriptyline and gabapentin don't appear here...
I think even low carb can yield benefits for some people. Why not give it a few weeks and see? If it works, you can go full keto. You're also less...
@Jonathan Edwards, what do you make of this? Exciting or another non-result?
I've had a short break from low-carb when I was on holiday, and I got migraines every day. They've gone again now.
I think that the problem is diagnosis. ME may be recognised by them 'unambiguously', but diagnosis is much more ambiguous, so there's leeway for...
It sounds like it'd be a downstream metabolic issue (like the hit-and-miss findings about glucose metabolism) that are a result, rather a cause,...
So all they had to do was tell patients to go to school 9 days out of 10 in the preceding two weeks, and then they fulfilled that criteria.
Can you contact Fightback 4 Justice? They're not free but can help and give advice. They have a lawyer with ME on their books.
It could be another downstream effect of something else. Just because it's diagnostic for a condition doesn't mean it's causative, if that makes...
And could this knock-on effect be responsible for rt3 issues too?
This might also be why drugs like amitriptyline work for a minority of patients (it increases noradrenaline, as do the SNRIs used in FM). So is...
I should think that your own transcript, perhaps with a copy of the audio recording, could be submitted to the assessors as evidence of...
I've heard this before too. Recordings also won't be used in most tribunals due to time, although a transcript done by a neutral and approved...
Wouldn't low tyrosine also lead to low dopamine, which is implicated in central fatigue in some other illnesses?
How good is this study?
It's probably very accessible for working healthcare staff, though, and not too gruelling for mild to moderate patients. I also like that it...
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