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  1. JemPD
    Post

    UK: PIP appeals - advice, recommendations?

    That's fantastic @josepdelafuente very best of luck with it :)
    Post by: JemPD, Feb 2, 2023 in forum: Work, Finances and Disability Insurance
  2. JemPD
    Post

    Treatment Harms to Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2022, Marks

    oh dear, thats a bit cringeworthy 'magnificent significance'.
    Post by: JemPD, Feb 1, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. JemPD
    Post

    ME payback timescales from trauma and recovery

    So sorry to hear of your ordeal Sally i cant offer any advice really as i've been as ill as you are now for upwards of a decade, but it wasnt...
    Post by: JemPD, Jan 31, 2023 in forum: General and other signs and symptoms
  4. JemPD
    Post

    Covid-19 vaccines and vaccinations

    So what time of day is it saying is best to get vaccinated? i cant pick out the key point through all that information
    Post by: JemPD, Jan 31, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  5. JemPD
    Post

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    oh... very good!:rofl:
    Post by: JemPD, Jan 29, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. JemPD
    Post

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    exactly... If i, while having a broken leg (for example), went to the doctors in huge distress reporting i was hearing voices telling me to kill...
    Post by: JemPD, Jan 29, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  7. JemPD
    Post

    The Link Between Empty Sella Syndrome, Fibromyalgia, and CFS: The Role of Increased Cerebrospinal Fluid Pressure (2023) Hulens et al.

    yes! thank you
    Post by: JemPD, Jan 29, 2023 in forum: ME/CFS research
  8. JemPD
    Post

    UK: PIP appeals - advice, recommendations?

    The other thing about having help is that if you do it all on your own they may use that against you - they may make the argument that if you can...
    Post by: JemPD, Jan 29, 2023 in forum: Work, Finances and Disability Insurance
  9. JemPD
    Post

    The Link Between Empty Sella Syndrome, Fibromyalgia, and CFS: The Role of Increased Cerebrospinal Fluid Pressure (2023) Hulens et al.

    I had lumbar puncture originally during investigations - 20 odd yrs ago, & the CSF pressure was very high they said - the dr doing it even cried...
    Post by: JemPD, Jan 29, 2023 in forum: ME/CFS research
  10. JemPD
    Post

    UK: PIP appeals - advice, recommendations?

    I'd missed that detail in your original post Joseph. And while it is certainly still possible for them to mess with your UC if your PIP doesnt go...
    Post by: JemPD, Jan 28, 2023 in forum: Work, Finances and Disability Insurance
  11. JemPD
    Post

    Myalgic encephalomyelitis/chronic fatigue syndrome: an overview of current evidence 2023 Ludwig et al

    :rofl: perfect
    Post by: JemPD, Jan 27, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. JemPD
    Post

    UK: PIP appeals - advice, recommendations?

    My advice would be to join (subscribe) to the website www.benefitsandwork.co.uk It costs £20 a yr but is worth 10 times that in my experience....
    Post by: JemPD, Jan 27, 2023 in forum: Work, Finances and Disability Insurance
  13. JemPD
    Post

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    thats impressive @IanMcPhee :) your Dad would be proud of such a scientific appraoch :heart: edited to tag
    Post by: JemPD, Jan 24, 2023 in forum: Drug and supplement treatments
  14. JemPD
    Post

    Aversion to activity - distinct from fatigue or not?

    yes i can relate to that, like everything within you is telling you SUFFERING, like the signals are generalised rather than specific like pain...
    Post by: JemPD, Jan 22, 2023 in forum: General and other signs and symptoms
  15. JemPD
    Post

    Cancer Fatigue Scale

    Eh? what things? is my concentration impaired that i can answer but can i concentrate on certain things... which things? reading? watching tv? an...
    Post by: JemPD, Jan 22, 2023 in forum: Subjective outcome measures (questionnaires)
  16. JemPD
    Post

    Aversion to activity - distinct from fatigue or not?

    yes i know, i agree, my point was that you need to be careful when you call it 'aversion'. Thats not an optimal term because it is oft used by...
    Post by: JemPD, Jan 21, 2023 in forum: General and other signs and symptoms
  17. JemPD
    Post

    (CDC) Diagnosis and Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2023

    THIS.
    Post by: JemPD, Jan 21, 2023 in forum: ME/CFS research
  18. JemPD
    Post

    Aversion to activity - distinct from fatigue or not?

    My experience chimes with @Trish I think we need to be careful about calling it aversion, because the BPs theory is all about us feeling avoidant...
    Post by: JemPD, Jan 21, 2023 in forum: General and other signs and symptoms
  19. JemPD
    Post

    Building the ideal ME/CFS research institute

    precisely indeed. This is one of the issues, because its human nature for people to think that whichever 'version' of, or whichever...
    Post by: JemPD, Jan 20, 2023 in forum: ME/CFS research
  20. JemPD
    Post

    Building the ideal ME/CFS research institute

    Yes one of the things i find most frustrating is because so many researchers (even outside the BPS crowd) dont seem to understand what ME/CFS even...
    Post by: JemPD, Jan 19, 2023 in forum: ME/CFS research
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