but that brings me back to the original point... it depends on the dx criteria. they do all check the dx i think, but if you check it via Oxford...
I agree with the OP. ISTM that they redefined ME into Tired All The Time (called it CFS, conveniently shortened to CF), then applied their...
sometimes it can be sooooo confusing when you have a lot of different things! Good luck with it all. Just as an aside i do have yearly TV...
Well i had PCOS for 6-7yrs before the ME showed up, i never noticed any significant symptoms that were similar to ME before i got ME... all my...
I have had PCOS for 29yrs @Haveyoutriedyoga, i only got proper treatment after pushing for gyn referral in 2002. I was treated with metformin for...
are they serious, its ruddy obvious.... how much data do you need?! its like saying there is little data to show that there is more natural light...
ahhh! yes of course :) Yes i would agree i was really responding to anecdotes of people (i read a few but only on this thread so i dont know how...
ahhh ok, so over a large amount of data (time & number of participants) fluctuations & outliers dont scupper the result?
daily step count is good. But the trouble with it is that life isnt consistent. So weeks where my step count is low may be because i had to do a...
ooo thats good! You are so great at these videos Adam thank you so much :)
This is one of the main infuriating things for me... THEY are the ones who redefined ME, as a "fatigue" condition, & whitewashed PEM out of the...
I am no scientist but i was a hairdresser many moons ago. We used 3,6,9 & 12% strength depending on the task. Or in 'old' language 10,20,30,40...
Sure but the inclusion of ME in the name is basically a sop for patients who hate the term CFS. There is no conclusive proof of encephalomyelitis...
Yes, this would also include you as focussing too much on researching your symptoms/being obsessed or whatever, which is part of the criteria for...
LOL there's no way it will be like that here! if you got paid just £2 a wk they'd still deduct it from yr measely benefit amount. From what i've...
I'd be willing to participate in a trial like that. I'd even be willing to invest in a smartphone for it (lol i dont have one at the moment & have...
I cant stand this cruelty. It makes me want to scream, these researchers cant seem to grasp that ME/CFS is not tiredness, you cant induce it in...
thanks @Trish good to know i'm not going completely dotty :D
I wish that were true, but I think the indirect impact will be massive. In terms of cementing his influence, in terms of the overall direction of...
I'm sure we've discussed this paper already? i cant find a thread but i remember the unsavoury aspects of it
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