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  1. JemPD
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Indeed, and well done & gratitude to everyone who has promoted the study in whatever small way. BTW when i said yesterday that i'm trying harder...
    Post by: JemPD, Sep 19, 2023 in forum: Recruitment into current ME/CFS research studies
  2. JemPD
    Post

    Cambridge ME protest calls for better medical training across UK

    Tilly i dont really understand the point you're making... As i said it was very well done to the protesters because i am very aware of how much...
    Post by: JemPD, Sep 19, 2023 in forum: General ME/CFS news
  3. JemPD
    Post

    Cambridge ME protest calls for better medical training across UK

    oh but if the people protesting happen to see this... very well done! :thumbup:
    Post by: JemPD, Sep 18, 2023 in forum: General ME/CFS news
  4. JemPD
    Post

    Cambridge ME protest calls for better medical training across UK

    i know i mean how can this and this go together?! Its sickening keeping reading people being conditioned to think i have 'extreme tiredness'....
    Post by: JemPD, Sep 18, 2023 in forum: General ME/CFS news
  5. JemPD
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    yes i clearly missed that :rolleyes: am not on twitter & honestly i come on here when i am way too ill to be doing so, i just come on cos i...
    Post by: JemPD, Sep 18, 2023 in forum: Recruitment into current ME/CFS research studies
  6. JemPD
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    ah good glad i not missed it..... I must say it has lit a fire under me somewhat! :D I been dealing with so much with other health stuff on top of...
    Post by: JemPD, Sep 18, 2023 in forum: Recruitment into current ME/CFS research studies
  7. JemPD
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks @Andy I had no idea we were getting close to the closing date until this most recent newsletter. Was it publicised for a while (the...
    Post by: JemPD, Sep 18, 2023 in forum: Recruitment into current ME/CFS research studies
  8. JemPD
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I put a post in an MEA fb group i a member of today, to nudge people and there were a couple of comments & there was some confusion about how many...
    Post by: JemPD, Sep 18, 2023 in forum: Recruitment into current ME/CFS research studies
  9. JemPD
    Post

    USA - University of Washington: How's Your BS Detector?

    Has someone alerted them to PACE? it'd be a great example for them to use i'd have thought. @dave30th you very likely well aware of this but...
    Post by: JemPD, Sep 18, 2023 in forum: Research methodology news and research
  10. JemPD
    Post

    Case stories - hospital experiences?

    I am so, sooo, hearing you. In fact its existence is largely denied.
    Post by: JemPD, Sep 18, 2023 in forum: Resources
  11. JemPD
    Post

    Long Covid in the media and social media 2023

    thats actually really good. I'd like to print it out could you link to the source please @rvallee ? I worry about my loved ones they are so blase...
    Post by: JemPD, Sep 15, 2023 in forum: Long Covid news
  12. JemPD
    Post

    Healthcare employment as a risk factor for functional neurological disorder: A case–control study 2023 Vanini et al

    you've hit the nail on the head there i'd say :rofl: My cat started having something similar to non epileptic seizures (myoclonic jerks) she had...
    Post by: JemPD, Sep 14, 2023 in forum: Other psychosomatic news and research
  13. JemPD
    Post

    Developing a blood cell-based diagnostic test for ME/CFS using peripheral blood mononuclear cells, 2023, Xu, Morten et al

    thanks for that
    Post by: JemPD, Sep 11, 2023 in forum: ME/CFS research
  14. JemPD
    Post

    Developing a blood cell-based diagnostic test for ME/CFS using peripheral blood mononuclear cells, 2023, Xu, Morten et al

    Would love to get your take on this @Jonathan Edwards if you have time/energy
    Post by: JemPD, Sep 11, 2023 in forum: ME/CFS research
  15. JemPD
    Post

    UK Covid data

    yes several people sniggered at me in the doctors surgery the other day, i assume the N95 was the reason. I take it off in the doctors room...
    Post by: JemPD, Sep 11, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  16. JemPD
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    TBH my response when i read that my response was "oh ______ right off you sanctimonious _____" exactly couldnt agree more.
    Post by: JemPD, Sep 11, 2023 in forum: ME/CFS research news
  17. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    bless you @bobbler thanks
    Post by: JemPD, Sep 11, 2023 in forum: Work, Finances and Disability Insurance
  18. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    you dont happen to have a link to that slide/ presentation do you Bobbler?
    Post by: JemPD, Sep 11, 2023 in forum: Work, Finances and Disability Insurance
  19. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    I agree with all you say @Simbindi I am def going to try to respond.
    Post by: JemPD, Sep 11, 2023 in forum: Work, Finances and Disability Insurance
  20. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    thats good news, do you happen to remember the deadline off the top of your head?.. its online is it ?... like filling in a questionnaire online?...
    Post by: JemPD, Sep 9, 2023 in forum: Work, Finances and Disability Insurance
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