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  1. josepdelafuente
    Post

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Not sure if this is the right place, but for those on Twitter - I just Tweeted @ Andrew Gregory (Health Editor at The Guardian) a friendly polite...
    Post by: josepdelafuente, May 15, 2022 in forum: General ME/CFS news
  2. josepdelafuente
    Post

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Merged thread Independent (UK National Newspaper) article by daughter of ME sufferer on Sajid Javid announcement...
    Post by: josepdelafuente, May 15, 2022 in forum: General ME/CFS news
  3. josepdelafuente
    Post

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    I might have a contact there, will find out
    Post by: josepdelafuente, May 13, 2022 in forum: General ME/CFS news
  4. josepdelafuente
    Post

    UK: Priority Setting Partnership for ME/CFS

    My brain is not as well-trained to see those issues - could you elaborate a bit @Trish ?
    Post by: josepdelafuente, May 12, 2022 in forum: Advocacy Projects and Campaigns
  5. josepdelafuente
    Thread

    General tips for pwME when registering with a new GP in UK

    Hey all, I've recently moved to Hastings, my last GP practice in London were completely useless, I really had to fight every step of the way and...
    Thread by: josepdelafuente, May 11, 2022, 9 replies, in forum: UK clinics and doctors
  6. josepdelafuente
    Post

    Combined triple treatment of fibrin amyloid microclots and platelet pathology in individuals with Long COVID/ PACS..., 2021, Pretorius et al

    +1 to above
    Post by: josepdelafuente, May 11, 2022 in forum: Long Covid research
  7. josepdelafuente
    Post

    Combined triple treatment of fibrin amyloid microclots and platelet pathology in individuals with Long COVID/ PACS..., 2021, Pretorius et al

    Ha! Fair enough I'll look for that!
    Post by: josepdelafuente, May 11, 2022 in forum: Long Covid research
  8. josepdelafuente
    Post

    Combined triple treatment of fibrin amyloid microclots and platelet pathology in individuals with Long COVID/ PACS..., 2021, Pretorius et al

    How would one check/know? I have some blood test results saved but I don't know what all the names are!
    Post by: josepdelafuente, May 11, 2022 in forum: Long Covid research
  9. josepdelafuente
    Post

    Open Medicine Foundation (OMF)

    This is great, thanks
    Post by: josepdelafuente, May 10, 2022 in forum: News from organisations
  10. josepdelafuente
    Thread

    Dr Alain Moreau video - developing new test to discriminate between ME & Fibro

    [MEDIA]
    Thread by: josepdelafuente, May 10, 2022, 11 replies, in forum: ME/CFS research news
  11. josepdelafuente
    Post

    What differentiates ME/CFS from known primary mitochondrial diseases; could mitochondrial disease cause PEM?

    Oh - it didn't at all come across as patronising or anything like that. My post was pretty knotty! all good! :)
    Post by: josepdelafuente, May 10, 2022 in forum: Possible causes and predisposing factor discussion
  12. josepdelafuente
    Post

    What differentiates ME/CFS from known primary mitochondrial diseases; could mitochondrial disease cause PEM?

    Thanks for this @bobbler !
    Post by: josepdelafuente, May 10, 2022 in forum: Possible causes and predisposing factor discussion
  13. josepdelafuente
    Post

    What differentiates ME/CFS from known primary mitochondrial diseases; could mitochondrial disease cause PEM?

    Thanks for clarifying - so the process of diagnosis always involves "ruling out" (or I suppose, not ruling in) a number of things without testing...
    Post by: josepdelafuente, May 10, 2022 in forum: Possible causes and predisposing factor discussion
  14. josepdelafuente
    Post

    What differentiates ME/CFS from known primary mitochondrial diseases; could mitochondrial disease cause PEM?

    Thanks for finding this @lunarainbows - another basic question from me now - so in theory is the idea that everything on that list needs to be...
    Post by: josepdelafuente, May 10, 2022 in forum: Possible causes and predisposing factor discussion
  15. josepdelafuente
    Post

    What differentiates ME/CFS from known primary mitochondrial diseases; could mitochondrial disease cause PEM?

    This is so interesting. For me this really gets to the heart of a lot of my confusion about what I "have" and what ME is (or isn't). I'm sure I'm...
    Post by: josepdelafuente, May 10, 2022 in forum: Possible causes and predisposing factor discussion
  16. josepdelafuente
    Post

    What differentiates ME/CFS from known primary mitochondrial diseases; could mitochondrial disease cause PEM?

    Thanks so much for taking the time to write all this @lunarainbows! I've read it twice, going to read it a few more times, lots to think about. I...
    Post by: josepdelafuente, May 9, 2022 in forum: Possible causes and predisposing factor discussion
  17. josepdelafuente
    Post

    What differentiates ME/CFS from known primary mitochondrial diseases; could mitochondrial disease cause PEM?

    This might be getting too off-topic now so moderators feel free to move if so. It also might have already been asked/answered somewhere else on...
    Post by: josepdelafuente, May 9, 2022 in forum: Possible causes and predisposing factor discussion
  18. josepdelafuente
    Thread

    Tollovid

    Anyone know anything about this? https://www.pharmaceutical-technology.com/news/3cl-pharma-study-tollovid/ Some long covid sufferers on Twitter...
    Thread by: josepdelafuente, May 9, 2022, 3 replies, in forum: Drug and supplement treatments
  19. josepdelafuente
    Post

    Shilajit

    Wow yes I somehow missed the bit about the rats. Does seem completely ridiculous doesn't it.
    Post by: josepdelafuente, May 7, 2022 in forum: Drug and supplement treatments
  20. josepdelafuente
    Thread

    Shilajit

    Is there a thread about this already? Someone just mentioned this to me - https://www.healthline.com/health/shilajit#benefits " 3. Chronic...
    Thread by: josepdelafuente, May 7, 2022, 6 replies, in forum: Drug and supplement treatments
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