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  1. josepdelafuente
    Post

    Fixing science means an end to gaming the system, 2024, Brown

    Really interesting read - and seems very important! Thanks for your work
    Post by: josepdelafuente, Sep 11, 2024 in forum: Other health news and research
  2. josepdelafuente
    Post

    Writers needed to debunk pseudoscience—paid

    I had a brief look on Twitter and he seems to have a pretty full-on "anti-woke" perspective, for want of a better or more meaningful description.
    Post by: josepdelafuente, Aug 11, 2024 in forum: General Advocacy Discussions
  3. josepdelafuente
    Post

    Blood transcriptomics reveal persistent SARS-CoV-2 RNA and candidate biomarkers in Long COVID patients, 2024, Menezes et al.

    is this a valuable thing to contribute money towards for those of us who might have some money to contribute and/or friends & family?
    Post by: josepdelafuente, Jul 15, 2024 in forum: Long Covid research
  4. josepdelafuente
    Post

    What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?

    This isn't a suggestion for the actual word - but I have a word I use to describe general vague superficial health / self-help babble which I...
    Post by: josepdelafuente, May 20, 2024 in forum: General Advocacy Discussions
  5. josepdelafuente
    Post

    To Live Past 100, Mangia a Lot Less: Italian Expert’s Ideas on Aging

    This is a fascinating thing to think about! I'm definitely in the quality over quantity camp I think! But your perspective also makes sense.
    Post by: josepdelafuente, Mar 27, 2024 in forum: Other health news and research
  6. josepdelafuente
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    hahaha this hadn't even occurred to me, but yea. wow. well spotted. jesus! I know there are so many other concerning issues with this paper which...
    Post by: josepdelafuente, Feb 23, 2024 in forum: ME/CFS research
  7. josepdelafuente
    Post

    United Kingdom: Action for ME (AfME) news

    I'm just suddenly vaguely pondering it... I feel like I'm too young! 35 seems too young to be a trustee of anything!
    Post by: josepdelafuente, Feb 23, 2024 in forum: News from organisations
  8. josepdelafuente
    Post

    The Long Haul by Lygia Navarro

    Wow
    Post by: josepdelafuente, Jan 13, 2024 in forum: Long Covid news
  9. josepdelafuente
    Post

    Experience with LDN? low dose naltrexone

    Oh, interesting, that's a shame.
    Post by: josepdelafuente, Jan 7, 2024 in forum: Drug and supplement treatments
  10. josepdelafuente
    Post

    Experience with LDN? low dose naltrexone

    Any updates on any of this? The working group or Jarred Younger's trial?
    Post by: josepdelafuente, Jan 7, 2024 in forum: Drug and supplement treatments
  11. josepdelafuente
    Post

    BBC: Blood test shows if organs are ageing fast or slowly

    Wow. Obvious point - would be so interesting to see if there were any trends that differ from healthy controls for pwme.
    Post by: josepdelafuente, Dec 7, 2023 in forum: Other health news and research
  12. josepdelafuente
    Post

    Open UK: Investigating the presence of Micro Clots and other blood factors in people with ME/CFS, Sheffield, Caroline Dalton, Ryback, Hillier

    Amazing! Nice one @Kitty
    Post by: josepdelafuente, Nov 30, 2023 in forum: Recruitment into current ME/CFS research studies
  13. josepdelafuente
    Post

    Closed ‘The Index of ME Symptoms (TIMES)’, developing a clinical assessment toolkit for ME/CFS

    Wow that was big but I just ploughed through it
    Post by: josepdelafuente, Nov 28, 2023 in forum: Recruitment into current ME/CFS research studies
  14. josepdelafuente
    Post

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Hi Trish, good questions! I'll see if I can answer usefully.. Hmm... I actually don't know, but I think so. I could message the Visible team in...
    Post by: josepdelafuente, Nov 17, 2023 in forum: Monitoring and pacing
  15. josepdelafuente
    Post

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    I've been using Visible with the Polar Verity Sense armband now for just over a month - my first day with the armband was 6th Oct. The cost was...
    Post by: josepdelafuente, Nov 17, 2023 in forum: Monitoring and pacing
  16. josepdelafuente
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Thanks for these summaries @Hutan !
    Post by: josepdelafuente, Oct 27, 2023 in forum: News from organisations
  17. josepdelafuente
    Post

    UK: University College London hospitals (NHS)

    Ahaaa I think your instincts are right about some of it being pure quackery. Don't feel any pressure to go through with any of those referrals if...
    Post by: josepdelafuente, Oct 9, 2023 in forum: UK clinics and doctors
  18. josepdelafuente
    Post

    UK - Energy - suppliers, costs, grants, meters etc

    I think so. Before I signed up I was getting 2 - 3 bulls**t phone calls (weird scammy advertising and fake HMRC messages) every day, now it's more...
    Post by: josepdelafuente, Sep 29, 2023 in forum: Work, Finances and Disability Insurance
  19. josepdelafuente
    Post

    UK - Energy - suppliers, costs, grants, meters etc

    I've signed up to a (paid) service called Incogni, to prevent this type of thing. This is what they say: "Our mission is to help you take back...
    Post by: josepdelafuente, Sep 28, 2023 in forum: Work, Finances and Disability Insurance
  20. josepdelafuente
    Post

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Hahaha, to be honest, I'm expecting to have pretty much the same experience! Let's see..
    Post by: josepdelafuente, Sep 28, 2023 in forum: Monitoring and pacing
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