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  1. josepdelafuente
    Post

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    I had the same issues Trish. I'm curious to see if the wearable monitor part that comes with Visible Plus makes any difference to either of those...
    Post by: josepdelafuente, Sep 28, 2023 in forum: Monitoring and pacing
  2. josepdelafuente
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Hello all... Dispatch from the front line. I just had a PIP telephone assessment today. This is the second time I've applied for PIP. The first...
    Post by: josepdelafuente, Sep 26, 2023 in forum: Work, Finances and Disability Insurance
  3. josepdelafuente
    Post

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Yes, I believe that is the same one. Yea... it works out as £8.33 a month for a year's membership to Visible / connecting it to Visible for a year..
    Post by: josepdelafuente, Sep 23, 2023 in forum: Monitoring and pacing
  4. josepdelafuente
    Post

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Visible recently had the option in my app for me to join as a "founder member" of Visible Plus. I think this might be because I joined the...
    Post by: josepdelafuente, Sep 23, 2023 in forum: Monitoring and pacing
  5. josepdelafuente
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    Great article @B_V ! And yes as @Jaybee00 mentions, I'm wondering if this might be something any of us could get tested for (WASF3 over...
    Post by: josepdelafuente, Sep 17, 2023 in forum: ME/CFS research
  6. josepdelafuente
    Thread

    Anyone tried Zoe - a nutrition app?

    This is Zoe - https://zoe.com/ I'm definitely not suggesting it is a treatment for M.E, but I wonder if it might help some of us feel a bit less...
    Thread by: josepdelafuente, Sep 12, 2023, 28 replies, in forum: Nutrition, food sensitivity, microbiome treatments
  7. josepdelafuente
    Post

    Psychomotor Vigilance Test - discussion and testing

    My results: Results: Test Duration= 124 seconds Number of false starts= 0 Average response time= 350 msec over 26 attempts. Your results show...
    Post by: josepdelafuente, Aug 3, 2023 in forum: Other research methodology topics
  8. josepdelafuente
    Post

    IIMEC 2023: Maureen Hanson

    A great video. I definitely didn't fully understand everything, but I found it encouraging.
    Post by: josepdelafuente, Jul 21, 2023 in forum: ME/CFS research news
  9. josepdelafuente
    Post

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Not I
    Post by: josepdelafuente, Jul 21, 2023 in forum: Monitoring and pacing
  10. josepdelafuente
    Post

    A new consensus? - ME/CFS skeptic blog

    Great job! Very clear and concise. No blind spots in your vision!
    Post by: josepdelafuente, May 17, 2023 in forum: ME/CFS research
  11. josepdelafuente
    Post

    Review Mitochondrial and metabolic features of salugenesis and the healing cycle, 2023, Naviaux

    Is that your feeling about the whole conceptual framework / set of ideas, or just suramin specifically? I appreciate the article is 33 pages, and...
    Post by: josepdelafuente, May 16, 2023 in forum: ME/CFS research
  12. josepdelafuente
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    Thanks for that heroic shift @Hutan !!! Amazing
    Post by: josepdelafuente, May 12, 2023 in forum: ME/CFS research news
  13. josepdelafuente
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    Wow, this sounds like a psychotherapist who is fully on our team
    Post by: josepdelafuente, May 12, 2023 in forum: ME/CFS research news
  14. josepdelafuente
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    Ah well done for getting in there! It looks like there might be quite a few interesting talks. Looking forward to hearing everyone's thoughts on...
    Post by: josepdelafuente, May 10, 2023 in forum: ME/CFS research news
  15. josepdelafuente
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    Nice work Mr Trish! I started trying to work out how to register etc but I gave up... I managed to switch the page into English, and click some...
    Post by: josepdelafuente, May 10, 2023 in forum: ME/CFS research news
  16. josepdelafuente
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Good to have you here @sarahtyson
    Post by: josepdelafuente, May 10, 2023 in forum: ME/CFS research news
  17. josepdelafuente
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    Seconded, nice to know someone who posts here will be there! :)
    Post by: josepdelafuente, May 9, 2023 in forum: ME/CFS research news
  18. josepdelafuente
    Post

    Research news from Bhupesh Prusty

    On a slightly random but related note, I'm actually travelling to Wurzburg for work in a few weeks, to play a gig. Maybe I'll see if Bhupesh wants...
    Post by: josepdelafuente, May 8, 2023 in forum: ME/CFS research news
  19. josepdelafuente
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I submitted my spit kit a few weeks ago! Been a bit of a mad time so forgot to update
    Post by: josepdelafuente, Apr 25, 2023 in forum: Recruitment into current ME/CFS research studies
  20. josepdelafuente
    Post

    UK: University College London hospitals (NHS)

    Hi all, had an appointment with Dr Peter Gruenewald at the UCLH ME/CFS clinic and it was actually a surprisingly positive experience. I'll send...
    Post by: josepdelafuente, Mar 14, 2023 in forum: UK clinics and doctors
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