One caveat is that the mean age of participants was 60 and they were recruited before vaccination became widely available.
If I understand correctly, the selection criteria already required persistent moderate to severe fatigue and exertion intolerance with PEM....
Interesting, thanks for sharing. The original trial had severe limitations though. This paper writes: "To mimic clinical practice, STAR*D used an...
[MEDIA] Tweet links to this article by Eric Topol The heightened risk of autoimmune diseases after Covid ERIC TOPOL
Summary Background Case reports suggest that SARS-CoV-2 infection could lead to immune dysregulation and trigger autoimmunity while COVID-19...
I think we saw something similar in the EBV-studies, for example the one by Jason and Katz in Chicago. Early on in post-infectious ME/CFS the...
So at a first visit at long covid clinic, a third of patients met ME/CFS criteria but at the second visit half of them had improved and no longer...
I remembered that she also gave a talk presenting the same ideas a couple of years ago, I think at one of the OMF-conference but I'm not quite sure.
Would it make sense to test if Metformin could reduce the risk of ME/CFS following EBV-infection?
I was wondering if a trial of Paxlovid for EBV-patients would make sense to see if it would reduce the risk of ME/CFS. But I had not realised it...
I think the 2011 analysis by Pishur et al. that highlighted the gene WASF3 in CFS, used data from the Wichita CDC study which used a very broad...
The description probably says more about the therapists at the clinic than the patients.
I think the tendency for physicians to blame patients, especially if their illness is poorly unexplained, is much older than the neoliberal era,...
Caveats: This was an online survey that relied on participants' self-reports of ME/CFS diagnoses, so it may not be very accurate. It was...
For those who are having difficulties in reading the whole text, I suspect that section 5 is the most important one as it presents the suggested...
Had the same impression. In my view, the main problem lies in the medical and research community and there is a limit to what governments and...
Well said, and largely agree. I have been ill for a long time and it is becoming more and more difficult to imagine that I will be fully healthy...
Ren Grill, the musician who was in Unrest know also seem to have a successful YouTube channel with over 1 million subscribers....
Recently I also noticed that others had success on YouTube. Vlad Vexler has more than 100.000 subscribers for his channel where he talks about...
I thought it might be useful to compile a list of inspiring, interesting or notable people with ME/CFS who despite their illness were still able...
Separate names with a comma.
