I often have the impression that ME/CFS is an edge case in medicine, one where the advocacy community is quite active and vocal and thus exposes a...
Good point. The situation is so absurd it is hard to describe accurately to outsiders.
I don't think it is an official term though, probably more like slang. https://www.vlaamswoordenboek.be/definities/term/Belgisch%20compromis...
I've written some of my thoughts about the new reports and guidelines on ME/CFS that have been published over the past 5 years. They seem to...
I have the impression that the final result is more the result of diplomacy and politics than scientific assessment of the evidence. Take for...
Looking back at the report the main thing that stands out is that they only looked at studies that required 80% of patients to have PEM. This...
There is also a longer page on treatments which can be viewed here: https://www.gesundheitsinformation.de/behandlung-von-mecfs.html It presents...
Here's a comparison of the summary section on treatment in the draft versus the final report. The bolding is mine because it seems that this is an...
Skimmed through the report. It seems that they toned down their statements on GET and CBT and changed their prevalence estimates but that not much...
Does anyone know to which study they are referring here on page 7 of the PDF, in the introduction: "Eine erste Studie zur Verbesserung der...
This seems to be the link to the final report: https://www.iqwig.de/download/n21-01_me-cfs-aktueller-kenntnisstand_abschlussbericht_v1-0.pdf
This looks a bit similar to the info the CDC provides, especially the part on GET and CBT. Not great but not bad either, probably a significant...
I was wondering the same thing. I'm quite skeptical that there are good quality tools to assess services.
Thanks for sharing.
His website still states: "I offer consulting services. These are distinct from medical services, and I do not offer medical services. I have no...
Not sure if it is a good idea to let patients decide which topic of ME/CFS studies they would like to participate in. This will only increase...
I think this is a central question. Lifelines has previously published on CFS but this was based on self-report which is probably not very...
No, haven't seen any specific target number or details about this project. Would be interesting to learn more about it.
Thanks. It's a rather short text apparently. I've pasted an English translation using DeepL below. Regarding ME/CFS: Recognition, medical care &...
Yes the difference in income and education as risk factor are interesting. Compared to hospitalized patients, a higher income decreased the risk...
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