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  1. Invisible Woman
    Post

    Physical activity intensity but not sedentary activity is reduced in CFS and is associated with autonomic regulation, 2011, Newton et al

    I have experimented in numerous way to find a way to be able to do more. Pacing, task switching enforced rests at set points between or during...
    Post by: Invisible Woman, Jun 4, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Invisible Woman
    Post

    Physical activity intensity but not sedentary activity is reduced in CFS and is associated with autonomic regulation, 2011, Newton et al

    Another point of weight is that when I am in PEM, I tend to go off fruit and veg and crave carbs. The way I eat now makes it very obvious to me...
    Post by: Invisible Woman, Jun 4, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Invisible Woman
    Post

    Patterns and predictors of sick leave after Covid-19 and long Covid in a national Swedish cohort, 2021, Westerlind et al

    Eh? Is it me or does that sentence not make sense. If no socioeconomic factor predicts the length of sick leave it surely that indicates that a...
    Post by: Invisible Woman, Jun 3, 2021 in forum: Long Covid research
  4. Invisible Woman
    Post

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    Yep and a mildly affected patient who is constantly in PEM may not realise it because they don't know really any better. I reckon I spent a lot...
    Post by: Invisible Woman, Jun 3, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Invisible Woman
    Post

    Coenzyme Q10: Clinical Applications beyond Cardiovascular Diseases, 2021, Testai et al

    Been there, done that 20 odd years ago. Made zero difference. But then I don't really count fatigue as a primary symptom so...... The Fatigue...
    Post by: Invisible Woman, Jun 3, 2021 in forum: ME/CFS research
  6. Invisible Woman
    Post

    The biology of coronavirus COVID-19 - including research and treatments

    I believe, but can't for the life of me remember the source, that the so called Indian variant was affecting young teens i.e. 15 and younger....
    Post by: Invisible Woman, Jun 3, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  7. Invisible Woman
    Post

    Post-Exertional Malaise ... Related to Central Blood Pressure, Sympathetic Activity and Mental Fatigue in [CFS] Patients, 2021, Kujawski, Newton et al

    1st. Fukuda - well okay, I understand they want to.compare patients who experience PEM with patients who don't but still.... 2nd. CFQ - not...
    Post by: Invisible Woman, Jun 3, 2021 in forum: ME/CFS research
  8. Invisible Woman
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Again, I don't want to hassle you @Hilda Bastian but I am wondering if it's the case that you were unaware of the politics around patient...
    Post by: Invisible Woman, Jun 3, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  9. Invisible Woman
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Are you aware @Hilda Bastian that ME patients repeatedly raised Freedom of Information Requests over the years for access to the data from the...
    Post by: Invisible Woman, Jun 3, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  10. Invisible Woman
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I appreciate activism from your perspective is not a negative nor pejorative term @Hilda Bastian & why should it be? However in our world the...
    Post by: Invisible Woman, Jun 3, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  11. Invisible Woman
    Post

    Elements of Suffering in [ME/CFS]: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected, 2021, Fennell et al

    FFS with the art therapy & journaling! Losing your job, at risk of losing your home, significant relationships & life as you know it mainly...
    Post by: Invisible Woman, Jun 2, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Invisible Woman
    Post

    Physical activity intensity but not sedentary activity is reduced in CFS and is associated with autonomic regulation, 2011, Newton et al

    Absolutely. I know people who are fit and exercise /play sport regularly yet are still quite overweight. Not necessarily to the extent of being...
    Post by: Invisible Woman, Jun 2, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. Invisible Woman
    Post

    Physical activity intensity but not sedentary activity is reduced in CFS and is associated with autonomic regulation, 2011, Newton et al

    Thanks @Nightsong! :thumbup: Yep that would be a misleading and problematic one for me. My primary cognitive problem is loss of processing...
    Post by: Invisible Woman, Jun 2, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Invisible Woman
    Post

    Physical activity intensity but not sedentary activity is reduced in CFS and is associated with autonomic regulation, 2011, Newton et al

    Has anyone seen the Fatigue Impact Scale? We're all aware of the problem with scales/questionnaires that use vague terms such as "fatigue" or...
    Post by: Invisible Woman, Jun 2, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Invisible Woman
    Post

    UK: NHS data sharing – deadline imminent

    Thanks for mentioning this @Kitty :thumbup: I had heard anything about it. I opted out previously and my health authority also have a data...
    Post by: Invisible Woman, May 31, 2021 in forum: Other health news and research
  16. Invisible Woman
    Post

    Covid-19 vaccination experiences

    Some of the symptoms you describe with the legs are similar to symptoms I've experienced with ME - though it was much worse earlier in the illness...
    Post by: Invisible Woman, May 30, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  17. Invisible Woman
    Post

    Covid-19 vaccination experiences

    I'm so sorry @Keela Too :hug:. So hard.
    Post by: Invisible Woman, May 30, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  18. Invisible Woman
    Post

    “It’s not all nice and fun”: Narrating contested illness on YouTube and Instagram, 2021, Groenevelt

    We often see papers here looking at depression as at least a comorbidity with chronic ill health. It seems the NHS and government/healthcare...
    Post by: Invisible Woman, May 30, 2021 in forum: Other psychosomatic news and research
  19. Invisible Woman
    Post

    “It’s not all nice and fun”: Narrating contested illness on YouTube and Instagram, 2021, Groenevelt

    It's society's & our own expectations as people with chronic health conditions that frustrate me. It can often be self defeating. On more than...
    Post by: Invisible Woman, May 30, 2021 in forum: Other psychosomatic news and research
  20. Invisible Woman
    Post

    The Ethical Consequences of Medical Objectivity, 2021, Sevareid (Masters thesis)

    Why better integration of the speciality of mental & behavioural health over any other speciality such as endocrinology or gynaecology, for...
    Post by: Invisible Woman, May 29, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
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