I understand the need to be positive about the way certain things are. I do. The world isn't entirely positive nor negative and balance in all...
That's all true but not quite what I meant. Pre or around the time.of diagnosis I wasn't pacing because I didn't know what that was. I didn't...
No, I don't think we should extend this to our situation. Not when it comes to ME patients. I have personally been told that I should go have...
Me too. I was struggling for a while and the whole fake it 'til you make health strategy means actively ignoring symptoms hoping they'll...
I wonder if it's also worth finding out if those with a less clear cut onset was diagnosed with another condition that could confuse the clinical...
Not always. There is nothing worse than going through all the effort to talk to someone in the hopes that they can improve your lot, only to find...
I'm day 3 post 2nd AZ jab. I was at least mildly nauseous for most of yesterday & felt horribly ill yesterday evening. I also felt really,...
This is what they'd been taught in epidemiology lectures so how an event or disease affects people be it in the same way or differently provides a...
Right. So instead of learning proper listening skills they don't listen at all. What could possibly go wrong? Lots of professions have to...
It should be an optional small piece at that.
He's doing well now, thanks. I'll put a pupdate on the dogs thread in a day or so.
I had my 2nd AZ jab yesterday. Had zero side effects after the first which really surprised me. Yesterday about 10 minutes after the jab the top...
Almost by definition this will.exclude a great number of patients at the more severe range who have cognitive difficulties already and/or have no...
I'm probably not being terribly clear. I don't.think actimetry is a bad thing but I think if it's not used properly it can be a dangerous thing....
I see what you're saying @FMMM1 but the problem is I don't think actimetry can paint the full picture. It is simply looking at a the disease from...
Counselling has it's place but when it is used as a sticking plaster measure it can cause more problems than it helps. For those who are dealing...
I guess it depends if one assumes suicide can only be caused by mental health problems rather than a logical and rational choice where one chooses...
I agree. However, 20+ years in to life as a chronically ill person dealing with the health system and authorities has taught me a couple of...
No. Unfortunately, that's not how the cognitive problems manifest, in my case at least. My cognitive function waxes and wanes during the day...
We would also need to bear in mind that this captures physical activity only & not cognitive function. Even in my state I am probably more...
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