Exactly. The women I saw were finished treatment but before the long term effects were felt. I was frankly shocked how limited the range of...
I spent a fair bit of time with cancer survivors practising yoga. On of the first things you notice with those who have had breast cancer surgery...
Yep, I can understand that feeling. It also shows how wrong Sharpe is about groups being pessimistic. i feel like....can I be arsed fighting...
You're probably right. He's certainly very quick to cash in though. We've already looked on in bemusement at his very public and emotive...
BPSers are masters of circular reason and there was always the danger for long covid sufferers that they'd be stigmatised & marginalised in the...
Here's another - and this is me being very cynical and it may not be true a) The guy claimed to be ill & I don't doubt he was. He claimed he...
Exactly. If I have a criticism of ME charities in the past it has been that I think they're over optimistic & therefore potentially misleading...
I was told that the majority of people who develop ME and will recover do so within the first year. So, even if we ignore the fact that Garner...
err.....why? I have lost people very close to me very suddenly, I mean literally dropped dead. I have also been made redundant - at a time when...
I was once told that as there is no cure, no effective management treatment and no underlying pathology I should force myself to return to work...
Section 3 of the minutes that discusses Andrew Morris' involvement sounds good. " AM would initially form a steering group of 4-6 people to...
One thing I will note that for pwME and other debilitating conditions that restrict to the same level - we still face all the problems of daily...
Personally, I think it's a stretch to class recognition that your emotional reaction is affected because you're in PEM and have overdone it as...
One of the problems with diagnosis is the way the wider world views ill health and disability. I remember when I was first ill there was an awful...
When my ME was less severe I definitely used minor, simple physical chores as a distraction from those more complex and long cognitive tasks that...
I think this is spot on. No matter how well you cope with a situation, eventually you adjust whether you like it or not (something BPSers...
I know some say emotional lability is a symptom of ME. Personally, I find that to be a symptom of deep PEM. Most of my coping is very much of...
Propagated by other people who didn't question. If they knew the facts could be checked that easily then they were relying on other people not...
I was the one who was sick a lot as a kid. I flippin' hated it and would hide it for as long as I could. Often to be ratted out by my own...
My take away from this reinforces that no matter the source ask for proof. This certainly cuts both ways & I think this is something we as...
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