Coming at this as someone who knows nothing about them, when I viewed their website my conclusion was that they appeared to be set up to give...
Are there actually any ME patient members of this organisation, as when I looked over their website all they seemed to offer patients is the...
So the clinic that Mike Beadsworth, one of the professionals who resigned from the guideline committee, now runs? Michael Beadsworth a consultant...
And the IAPT outcome measure are highly misleading, so I'd anticipate any ME/CFS patient receiving treatment via this route is going to be deemed...
Did the Liverpool clinic respond? I suspect he is referring to the clinic he used to run. EDIT: I meant the clinic Allister Miller used to run, as...
Yes, an excellent well balanced article. Apt that is is published today.
Yes (you are correct). Because there are no services for patients with severe ME/CFS in the UK, most CFS clinics state they only accept mild and...
I think it shows patients are in favour of the draft guidelines as they saw them, which shows that it is not a small minority of patients opposing...
That worked for me and I use Google Chrome. So thanks for the advice as I can again see comments like I used to be able to (no way I am setting up...
You are unfortunately living in an alternate universe, one bound by the laws of physics and time...
He is referring to the outcomes recorded by clinics. As members here are well aware, thanks to @Jonathan Edwards, the unreliability of these...
Allister Miller has a vested interest, due to his intricate involvement with the PACE trial (quote from 2011):...
https://www.ncic.nhs.uk/consultants/alastair-miller A pretty weak argument from the Deputy Medical Director of the Joint Royal Colleges of...
Getting a formal diagnosis does not involve 'medication for life'. Like any other medical problem, patients have choices after diagnosis! She is...
I'm wondering what impact the experience of being on the committee has had on those BPS/MUS members who PWME were concerned about at the time they...
I'm not on twitter so can't read the comments, but it is natural for there to be an increase in ADHD diagnosis over the last several years...
In light of the recent 'protest' resignations from the committee from 3 professional members with known conflicts of interests and/or clear...
Just bumping this thread up again in anticipation of Wednesday... https://www.nhshealthatwork.co.uk/chronic-fatigue.asp The 2006 guidelines are...
I don't know other's experience, but I have never - in 30 years - had a medical doctor suggest directly to me that my ME (which they do sometimes...
I guess this is an individual choice, but I wouldn't state that. I would state I wasn't suffering from a mental health condition. I feel it is...
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