I think the reason is that ME sufferers know their own thoughts and attitudes to life, that they have a positive outlook on life that is...
I am not talking about 'arguments' but what happens in actual practice to actual patients. I am not sure what you mean by primary and secondary...
I do agree we need to be careful with our arguments in the context of dealing with the BPS brigade and when writing to journals, but I think we...
I think it is easy to fall into a trap that we are just dealing with BPS professionals, whereas in our daily lives we are dealing with family,...
But exercise, or at the very least 'normal activity' is essential for human life. The only reason I am alive is because I am financially supported...
But surely if GET has harmed you then this is proof of physical disease?
I don't understand why people who are not depressed or don't have a mental illness should be told to deny they aren't depressed or don't have a...
Great minds think alike....
Unfortunately, this is not the case in many of the clinics. Few have a medical doctor as part of the team, so any diagnosis given would be from a...
I think we (patients) should be pushing the main UK ME charities to take this issue up with BACME once the final NICE guidelines are published.
A very timely piece and worth reading as background to the recent government Green Paper on out of work and disability benefits. The below piece...
It would be a considerable saving for me as I have to pay £38 a month for the £15 36 Mb package (guaranteed to be about 27 Mb, the same as I get...
Presumably there is no BT fibre broadband to your flat then. In my area BT are the only company offering fibre broadband lines. When I went with...
I do wonder how many people are given a diagnosis of ME/CFS who are really in the phase of a post viral fatigue syndrome, i.e. a condition that is...
I may get my daughter to phone for me. I moved from BT years ago due to the difficulties and hours spent on the non UK customer helpline (even my...
I tried this a few weeks ago using the online application method and I kept getting a message at the end that there was a technical error and to...
I think some NHS services seem to offer the option for private treatments, in the same way that private companies can offer certain treatments on...
One of the most serious problems with even those clinics that feel they are trying to be helpful to ME/CFS patients is that they don't take...
I just looked up the Yorkshire Fatigue Clinic. I was shocked that they encourage patients to sign themselves and their carers up to an initial...
I also think this may be why we didn't see more resignations from the committee - there is still room for the CFS (now more CF orientated) clinics...
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