I was thinking about this too, really since the draft guidelines were published. I think S4ME picked up on this, but I can't remember what our...
Yes. When I read their brochure of treatments on offer, it seems they use the word 'integrated' for 'alternative'.... Edit: Or being more...
Doesn't this mean the onus will be on GPs to make the ME/CFS diagnosis? Wasn't it quoted in the past that about 40% of those who were referred to...
Further info on SLAM: https://www.kcl.ac.uk/ioppn/depts/pm/research/cfs/about/index I will be particularly interested to see how Kings deal...
Most of the NHS 'CFS/ME' services just seem to state that they 'follow NICE evidence based treatments and/or guidelines'. It seems that it is the...
But they have the research to back it up....:rolleyes: https://www.royalfree.nhs.uk/services/services-a-z/fatigue-service/cfs-me-research/ It...
They set up the new 'Chronic Fatigue' service by merging with the existing pain clinic in 2018 apparently. But the new service does include...
Seems so: https://www.healthwatchhackney.co.uk/news/mental-health-trust-pulls-out-of-chronic-fatigue-service/
I really hate the term 'living well', it completely trivialises how difficult it is to suffer from a serious chronic illness. There is a big...
Sounds like they've never seen a patient with actual ME/CFS... It contradicts the importance of people being given an early diagnosis and being...
I am autistic as well as having the severe ME. I had had a meltdown in my first face to face, where I was forced by ATOS to attend an...
I agree, it's definitely worth involving the MP. I am doing this for my friend too. I involved my MP in my last PIP prior to the face to face. I...
I am really frustrated by my ME limitations as I would love to help more people. I am currently helping someone with a complex PIP MR case. People...
The DWP Decision Maker (and HCP who produces the medical report) are supposed to consider ALL the evidence available to them, and seek additional...
I think what you get with Fightback is legal knowledge of relevant caselaw, that is pretty difficult for a non-specialist to have easy access to.
I think Fightback are good for people who can send them all the relevant medical reports and medical evidence to work through, but less so for...
Fightback4Justice offer a MR writing service, but I think they charge around £85 for it. They say they can prepare the papers fairly quickly, I...
This is a really worrying Green Paper. If people in the UK are able I would suggest responding to the consultation, but ensure you word your...
In England (NHS), the phrase 'severe mental illness' has a specific medical meaning, usually only given to people whose illness includes an...
Someone should suggest that the GRADE system (and any other such tools) automatically should rate any research that doesn't provide open access to...
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