Also relevant if you are deemed extremely clinically vulnerable and depend on a Personal Assistant/Unpaid carer/partner or family member for your...
Carers added to Group 6 (England) for priority vaccination:...
So they're using the (subjective) PHQ 15 as the primary outcome measure!...
The researchers presumably thought that using a facilitator who 'knew nothing about ME' would lead to more 'accurate', 'clean' and/or 'objective'...
To be quite frank, the assumption that a researcher can eliminate bias by assuming that the respondent is generating the bias by their approach to...
I gave up on the Action for ME NICE guideline survey for the reasons given by @lunarainbows . It also felt like they were 'putting words into my...
I also don't answer any survey if I can't read through the whole thing before starting it. Most of my autistic peers are the same in this regard....
As an autistic person I find questionnaires really difficult and stressful, I end up in knots as none of the response options provided ever fit my...
Yes, my choice is based on the fact that I live alone and am shielding anyway. I haven't been able to drive for the last year and now with...
Forum members have really helped both clarify my understanding of, and also have given me the language to be able to much better describe and...
I'm going to take the same approach, although I think my GP would probably offer me the Oxford vaccine via a home visit. The whole 12 weeks...
I also get severe problems with my eyes in PEM, which has been the case since I first got ME 28 years ago. It feels like my tears are acidic (or...
The more severe I've become, the more difficulty I have with falling asleep too, and like your daughter, the sick feeling gets worse through the...
They have a lot of discussions about Long Covid on Times Radio: https://www.thetimes.co.uk/radio I'm listening to them discussing it right now,...
I also find the PEM doesn't start until I have slept. If I really need to complete a specific task I have always aimed to do it on the same day,...
I've often thought this too. Edit: I definitely feel like I'm 'poisoned' after exertion, which gets worse the 2nd and 3rd day after it.
Feeling some relief as my teacher daughter (the only family member who helps me/provides some care) has just told me she will now be getting a...
I now have to book Ocado slots at least 3 weeks' in advance, in November I could get one within a few days (this changed in December, but that was...
I worked out very quickly that exercise harmed me, back in the mid 90's, so would never have agreed to participate in a trial of GET. I am sure...
I do the odd order with Ocado, mostly for store cupboard items as they have such a large range of organic items unavailable from other...
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