I've heard people say it, for sure. When I was working full time I picked up most of the office colds, but I got noticeably fewer as I gradually...
I drive both my car and my wheelchair like that. Lean forward to create a space behind my back and the seat whenever there's a bump coming up,...
There might not be any need to, but it doesn't stop it happening. It's the same reason travelling as a passenger in a car can be as tiring as...
@Trish has basically written my submission for me! The only differences are that my response to physical exertion isn't as severe (I need to rest...
I haven't voted yet, as I can't take one of them. (Some asthmatics find aspirin and ibuprofen cause wheezing or chest spasms that are more...
People have chosen to end their lives because of it, though, that's the worry. Very severely ill people are likely in PEM most of not all of the...
No, absolutely not. But whether the problem is to do with the guidelines themselves or how they're applied, it has to be approached transparently....
Part of the problem seems to be the use of shadowy categories that are both explicit and not. Some people are put into them, explicitly or not,...
The wired-but-tired PEM phenomenon might be amenable to investigation. Specially as it's visible on heart rate alone for some of us. It starts on...
I'm going with @SNT Gatchaman's term. Disablingly severe and persistent over months shitfuckery...
It is. It's often talked about frankly and openly, sometimes with humour if that's what the person needs. One of the issues explored is whether...
Is it useful to talk about what might happen after PEG placement? There are obvious risks with the surgery, but there are probably also concerns...
I wouldn't describe it that way, as there are additional symptoms. They're still on the list of symptoms commonly associated with ME/CFS, of...
It's the tiny card you put in a mobile phone, which has the subscriber's phone number and various other data on it. Without that info, the mobile...
I had the over-65 'flu jab for the first time last year. I asked the pharmacist about the difference, and he explained that as people age,...
Maybe one of Maeve's gifts to us is better collective awareness of the need to describe ME/CFS without theories or mechanisms. I'm used to...
Welcome, @Aldebaran's Star. :) Me too. I sleep better when pacing well, and best of all if I get a virus or have a vaccination. But being...
It seems to be similar to, but not necessarily the same as, restless legs syndrome. People with RLS seem to say it happens most often at night, in...
We're all a bit different, but the various kinds of pain I have aren't like "normal" pain. It's not like a bone, tendon or muscle injury, it's not...
Maybe read the guidelines over a couple of days and then leave them to percolate for a while in your back brain. Or even do the PIP training...
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