Sounds awfully like Daffy's Elixir, doesn't it. That was advertised for: The Stone in Babies and Children; Convulsion fits; Consumption and...
This project looks great, @Chris Ponting, it's amazing the group is so committed that they're prepared to do this work after all their other work....
They don't even rush to psychologise some people with mental ill-health, especially when there were clear triggers for it. They help people gain...
Yep. Patients won't always know what should be studied or how it should be done, but may be clearer about what shouldn't be looked at or what...
Interesting, isn't it, that when people see a psychologist or counsellor to help them navigate a really difficult period, what they often find...
I wouldn't characterise the first four items as 'all or nothing' behaviours. They're part of chronic illness, and some of them are an inevitable...
Specially as the fatigue+ill feeling can come and go within the same day in milder ME. I get up feeling like death, my limbs are barely working,...
Doesn't really sound related at all, at least from the abstract.
Hear hear—thank you.
From my own experience I feel sure this exists. It would be interesting to do it over different time periods. There should certainly be a...
It wasn't accidental, though. It was part of the BPS spiel back in the 80s and 90s, one of their patient-blaming tactics. Things like that can...
Yeah, I think that came from a twisted framing of normal experience. People often don't like doing things badly or leaving them half done, but it...
Just been trying to distil what managing ME actually involves—what the verb is—and I think it's waiting. It's what I spend most of my time doing....
It does, but I worry about suggesting they're really manageable. And that if I'm not succeeding at the managing thing, it's a skill issue. All...
It hasn't done a fat lot of looking, TBH! There's not much research into the phenomenon itself. Much of the respectable work seems to have been...
I worry that it's partly due to the BPS lobby understanding that severe/very severe ME/CFS isn't their territory. That they might think it can be...
Yep. I'm moving away from using energy as well as pacing, substituting it with words like capacity and tolerance if they work in the context. I...
Blimey, poor guy!
So why don't they put their efforts into kicking up a stink about this being unacceptable?
Did the 'boom and bust' phrase partly evolve alongside GET clinics, I wonder? I didn't really 'live through' that time—I had ME but I wasn't aware...
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