For anyone considering writing a letter, one of the things it's worth looking at is the background information about the NICE guideline. This...
It's about as bad as it could be, isn't it. Do people think a very brief document about a patient's status would be useful for GPs, though? I...
Another way to do this might be to survey people who have been out of regular employment for more than six months since March 2020, for any reason...
This is great, thank you for all your work on it @Yann04! :emoji_bouquet:
They don't seem to have taken into account the financial toxicity (ugh) of bandwagon-jumping doctors offering investigations, treatments and...
Care plans seem to be a bit like emergency evacuation instructions. You put them up on the wall because the rules say you should, not because...
I'm only aware of the most obvious one, that given the state of our knowledge it's really hard to come up with strong enough cases for funding....
It would probably need several questions, tbh. Reynaud's is so common that up to one in five women may have it or get it at some stage. Men get it...
I understand the reasons for trying meds that don't address the underlying ME, but if they don't, can they be good candidates for the significant...
And for all the ones who were content and stayed together by choice, it'll be something else.
Funny, isn't it, that I'm of a generation where divorce among parents was quite unusual, yet people my age still have ME. It was even less common...
Yeah, I know – I just think it might not do a lot for their credibility to suggest switching on a huge funding stream before any structures are...
Was that not a bit...unrealistic? Established scientists are probably quite busy. I'd be concerned about anyone offering that much money on that...
Good segment. It must have been a bit tough on Charles, having to host the TV crew and then get himself prepared at that time in the morning.
I had just the same. When it was at its worst, the smell of my breath was so bad that people couldn't help recoiling. The only thing that...
There would need to be clarity that the unit wasn't treating very severe ME/CFS, but the effects of it. Perhaps one of the few effects where there...
Is it because she'd have had to show that discrimination contributed directly to Maeve's death, and that's difficult in someone who even with the...
I wonder what the threshold is that will change their minds. Is it a fixed number of death certificates?
This touches on something I've often thought about, but never actually said aloud in an ME forum because it sounds ridiculous. Microsoft Windows...
It is, but we have to remember that the hospital wasn't treating ME. It was—or should have been—treating malnutrition. The fact that it's...
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