It must be incredibly difficult. Do you have access to a counselling service where you'd be able to work it through? It might help you develop...
Maybe an intimate relationship needs a different depth of understanding, and that might take time to develop. It's true that most people don't...
It's a lot to ask, though, given that they're lost their child in such traumatic circumstances and then had to deal with the inquest. And done so...
Even if it happened, I wonder if it would achieve more than the inquest and the media coverage. Everyone can see it was a complete clusterfuck,...
Yes indeed. I suppose they meant liquid foods taken by mouth as well as the NG. Let's hope she recommends the system is changed to make it more...
Only because she can't know. None of us can, not really. There aren't enough recorded case histories of people who are as ill as Maeve for there...
No, NJ/PEG weren't tried. NJ was considered likely to fail, PEG doesn't seem to have been discussed.
Just quoting my own post in case this appears out of sequence: one of the important things about this verdict is that it is itself evidence....
The outcome was mostly what I expected, though that hasn't make it any easier to hear. It would have been impossible for the coroner to say that...
If it looks well set up enough to give clear results, I imagine it'd be good practice to wait? If not, then I guess there's an argument for doing...
Thank you, that sounds like a useful move.
As we don't yet have much on which to base a big high profile research study, I'd like the APPG to push for the basic groundwork on ME/CFS to be...
I think we should be doing exactly the opposite, and fighting to hang on to ME/CFS until we know more about it. ME/CFS has the advantage of...
That's what happened to me. In my case, the psychiatrists I was referred to were really helpful; they worked out very quickly that I didn't have...
Until you find out they were wrong too. Or ploughed on with research that, with the benefit of hindsight, probably held back progress. Or might...
Salt helps my OI, too, and generally makes me feel less unwell. I used to add a bit to food, till I stayed with someone who didn't use salt in...
Yup. And if anyone had found a way to "fix" it, they wouldn't be posting stories on Facebook. They'd be a busy specialist in a clinic or a hospital.
I thought it might be an idea at one time, but not now. National and international healthcare agencies have been actively moving away from naming...
As nobody asked him for his opinion and he obviously has nothing remotely intelligent or useful to say, hopefully they'll think he's irrelevant.
Other than my legs (which have a fixed weakness ), I can build some muscle. Possibly even normally for someone with my body-type: slow-twitch...
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