It could be, but there seem to have been endless problems getting the manufacturer to part with any—or something like that. That could be resolved...
It's not that I don't think it's a good idea, and it would be popular with patients. I just worry about what the realistic medication options are,...
I really hope they don't put some utter eejit in charge of it if it passes.
There might not be one, because the article (which would have attracted discussion) predates the forum.
Or is it to make money selling their treatment to desperate people.
Yes, I don't know much about the Abilify, but I've read about him using lorazepam to help tolerate some journeys or procedures. It would be...
I don't know whether it might be appealing to funders, but I can see there could be issues about trialling medications that might result in it...
Absolutely. I guess what I'm driving at is avoiding confrontation. Saying instead that there are constructive things you could do now, using your...
Maybe one effective strategy might to call for research for which a reasonable case can be made and which is do-able without a need to spend years...
This might be detailed and impactful. Maybe we should also prepare ourselves for it being brief, dry, or appearing to communicate too little of...
Not necessarily addressed to Lindberg, just a general question: Do we really understand this? Obviously muscle loss/atrophy is a big factor, but...
The process, yes, but to the experience of it? To understanding how to manage it? To making needs assessments, because volition and effort...
And resources. I'm struggling to get past that phrase "nursing burden" in relation to TPN. Nobody would use it about an ICU patient; it's just...
This is interesting, because it's not like dementia either. I once experienced some of those symptoms due to a severe B12 deficiency. There's...
I got ill at puberty and had worked out the sugar thing within the first two years, but the trouble is that even more complex carbs such as the...
I thought about the recovery position yesterday—more about even minor regurgitation being visible to anyone observing—but thought I might be...
Yes, me too. To all food, but a particularly enervating response to meals containing higher levels of glucose and salt, which leave me with such...
Maybe one of the basic points to establish is that people can't make assumptions about managing severe/very severe ME based on a familiarity with...
One effect hospital staff may be able to observe for themselves is that simply being there makes things even more intolerable. As soon as they've...
I don't think it is about volition and effort. It's about intolerability, and nobody gets to adulthood without experiencing that for themselves....
Separate names with a comma.
