That's interesting, I'd no idea about Solve's program. I've almost certainly read about work funded by it, but assumed it was co-funded by the MEA.
Especially as the only thing that appears to have worked was pacing and cutting down her hours at work. So healthcare delivered a big fat nothing,...
A former lecturer / supervisor friend called it Ooh Look At My Collection of Big Words. She occasionally asked students to rewrite a paper in...
Yes, it would help a lot if they rephrased it as "I was given information and support to make sense of post-exertional malaise (PEM) and the other...
I'm no fan of the questionnaire, but I'm not sure Q38 is trying to say anything about what causes of ME/CFS. I think it's asking whether they were...
Yes, definitely. I don't have any endocrine issues, and I do seem to have underlying ME that's not related to the steroid meds. I'm as sure as I...
Yes, they do exist—search for a clock with a crescendo alarm function.
Here you go:...
I haven't experienced such an abrupt shift, but I'm less severely affected than you. Typically what happens is that I squirrel myself out...
Discussion moved from Patient and Public Involvement opportunities in ME/CFS and other research **** Yes, that's fine. I've described it...
I don't usually use the phrase adrenaline rush for what I mean, but it does need some kind of phrase to describe it. Perhaps wired-but-tired is as...
So pleased to hear you're doing this research, Julia. Common steroid meds cause severe ME in me, and I've often wondered about other...
I've been on gabapentin twice for different things, and it didn't make any difference to my difficulty with this. No idea about any of the others....
The lack of access to specialists for severely ill people is worrying, but if we're focusing on those who develop nutritional failure, in a sense...
That should at least prick up ears, specially if it happened in a dozen people who'd been severely ill for a long time. I'm not really expecting...
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