They haven't spent much time listening to descriptions, then! People with attention deficit disorders don't get the buffering icon whenever they...
I have been known to use a sock draped across the top of a pair sunglasses when the glare from the sun got too much. I've also flown back from...
There are some aspects I haven't really seen explored elsewhere. It's hard to recall examples on demand (brain fog!), but for instance I've had...
Indeed. In which case, their concerns have been vindicated. The alarm bells went off for me as soon as I saw the article, never mind the...
Thank you, Adam, you've done an amazing job. I hadn't heard/seen some of that content before. The interview with Richard Horton is devastatingly...
Been doing some idle wondering about what it would take to persuade me to rejoin. It's probably quite an ask... 1) Current chair steps down or...
It's like trying to hold back the tide, isn't it. Trouble is, a lot of this has much more to do with politics than medicine, and that makes it...
Sports sunglasses tend to fit better and protect more against glare from above. I couldn't see in bright light even before I got ME, and used to...
Intriguing! My initial response is that, if a person's symptoms are not rooted in disordered thinking, CBT by definition cannot work. But there...
Possibly, but my N=1 experience is that cold water swimming is in part a stimulant therapy—albeit one using drugs manufactured in your body....
Real improvements aren't always the same as meaningful improvements, either. You shouldn't have to rely on statistical fudging to show the latter...
From @MSEsperanza: The Plos One cost-effectiveness study on PACE recently got referenced by Nick Brown: Posted on Bluesky:...
The onset of my B12 deficiency could have coincided with the development of two food intolerances, although it didn't make itself known until...
And using creative ways to enable that representation, such as each trustee having their own small panel of patient advisors who have valuable...
Yes, good points. I had the same problems, but in my case it would have been counterproductive to have data. The cause of the crashes was that I...
I haven't cringed so much since I heard elderly family members trying to get the language right when talking about a person of colour, without the...
It's valuable work, but as a moderately affected person, I don't think I've ever had a crash that came as a surprise or that I couldn't explain....
And at how many of them patients usually see a doctor when they attend, which is obviously critical if the NHS is to build an evidence base on how...
The fact they appear to think it's adequate is even more worrying than the original statement. They don't seem able to see that their messaging...
I get the impression it's a closed process, so it's unlikely to be easy to find that out. Good idea, though.
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