It actually seems okay given the description but this part is a massive facepalm Like hello tens of thousands literally developed extremely...
Arte which is the most popular channel to watch documentaries on in France, has made an ME/CFS documentary (I think Arte is also popular in...
I vaguely remember Ron Davis saying he used it to teach at stanford too but perhaps my memory is fuzzy.
Hahaha I did see a couple on there but the vast majority of the new signees are from the MEA newsletter I think.
It feels to me one of the largest problems in medicine is a lack of humility. It seems exceedingly rare to hear “we don’t know”.
The more I think about it and review the De-Paul Symptom questionnaire, the more I think it’s appropriate to say using the DSQ to measure PEM is...
Yes. I’m a little worried the story of long COVID will echo the story of ME. Lots of people start claiming it’s caused by persistent virus with...
Not really thanks for pointing that out. I sometimes use the search function and I didn’t realise this post was that old!
I find that to be a deeply worrying and inappropriate reply on his end.
Anedotal evidence (part of my family is french) very much supports that. Also I found this new article by Science based medicine well done...
I wonder if they differ depending on other factors in the same person. I’ve had wildly different responses to overexertion depending on how much...
Yes. I don’t know what malaise means in english, but from my french intuition “PEM” is practically as bad as “CFS”. To me when I first hear post...
If it’s not standard practice to republish in these circumstances, this is pretty outrageous.
Okay the republishing annoyed me so much I shared the petition on my instagram which has all my friends from before I got sick, many of whom do...
Added comment about the new review process being abandoned.
Yes for sure. But it’s got the aesthetic of and the cultural recognition as “science” therefore it is accepted as scientific in our cultural...
Do you think they did it on purpose to update the date? If so that is indeed outrageous.
I don’t wish to disparage relgion but it does feel quite equivalent to someone in the past suffering from illness, who prayed to a deity that they...
It’s compatible with the literature in a small psychsomatic echo chamber. They are the self appointed experts on FND (since they created it), and...
It’s so weird being patronised by “recovered people”. It’s like if back in the day people who recovered after a nasty bout of polio spent insane...
Separate names with a comma.