Also I calculated exactly what LCAP’s demand of 24 billion for LC at the NIH is equivalent to, and it is more than the yearly budget of the NIH...
I’m a bit concerned with the Sick Time’s Rpeorting of Long Covid. They seem to be doing a decent job, but consistently mention LCAP in a positive...
I’m a bit scared with the rhetoric I often see in long covid communities along the lines of “spend the vast majority on clinical trials”. While I...
I’ve talked with quite a few people who have tried LSD, psyilicobin, or MDMA with ME/CFS. I just once was told that someone with mild ME improved...
@Kitty just so you know, you aren’t alone. On normal days I drink maybe 3ish liters, in PEM I have to make myself physically uncomfortable and...
Do you think ARPA-H might be more promising in that regard? According to axios there are some politicians in the US trying to get 200million for...
Yep, thanks for brining that perspective Trish. Sometimes I forget how much worse off we’d be without the prior fights that were won.
Agreed. Just don’t think it means we shouldn’t criticise preoblematic research either. Though I agree that it’s often unfortunately having a...
It may be nothing compared to other diseases but that’s more than half the yearly NIH budget for ME/CFS. And as far as I know it is either the...
Reminds me of Wessley calling the PACE trial “a thing of beauty”...
I have a general feed set up for google news to catch the keywords long covid and me/cfs and it mostly works well but once in a while it randomly...
I thought that article was really well done. I’m just a little annoyed they got the single mention of ME as “chronic fatigue”. Though to be fair...
Donated.
Don’t know where to put this but this thread seems the most relevant. I created an rss feed for Trial by Error so people who get their news via...
I really wish someone in the ME world was connected to her in some way or had the resources to make a convincing pitch
We encourage researchers and service providers, as well as people with Long Covid to join our community on the Covid-19 Research Involvement Group...
I feel like this is basically everything in relation to ME/CFS. Man we need so much more funding…
That actually makes a lot of sense Forestglip. Claude AI by Anthropic based on the “Harmlessness through Constitutional AI model” ie. making the...
Trial By Error: The Michael Sharpe Crowdfunding Effect https://virology.ws/2024/05/26/trial-by-error-the-michael-sharpe-crowdfunding-effect/
I noticed that Chatgpt is much more inclined to psychologise ME when you call it CFS than when you call it ME/CFS. An example: My promt:...
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