I’ve seen similar language used in online ME forums that have a lot of people new to the illness and very mild. I think it’s a really hard pill to...
It’s crazy to me that their reporting is more “balanced” on the scam of a treatment the lightning process is, than it was when there were...
If I have the energy in the next few days I’ll send it to Chantal Britt, the head of the swiss long covid association (assuming they haven’t...
Thanks for doing that @forestglip. Also slightly random, but does anyone know if there is a way to see the most viewed me-pedia pages per certain...
Fair enough! I wish I could have the energy to use a laptop and train some ML models. That was a large part of the degree I was studying for...
Nominate this charity to get extra funding, takes 60 seconds :) [MEDIA]
Given these numbers, I wonder how accurate that 3.3 million figure that CDC published is. Although they asked patients if they “still have...
Wish I had some distant connections or idea how to contact melinda haha…
I don’t think he’s on here but if your serious about doing a decent project out of this you could contact Ror Preston, he might have some good...
I really think this is important. I know this isn’t referring to ME but lingering symptoms but I still feel drawing with a personal experience is...
Long Covid Teachers Join Forces to Sue Ministers - Schoolsweek https://schoolsweek.co.uk/long-covid-teachers-join-forces-to-sue-ministers/
Also if I’m not in PEM it’s pretty easy for me to recall what I did in the past 10 mins. If I’m approaching PEM, I will have a blank.
For me, getting easily irritated, stressed, or emotional means pem is starting soon.
Also this open source Deep Learning Model exists which tracks fatigue based on facial expressions. I don’t know how good it is though:...
This paper may be of interest; A comprehensive review of approaches to detect fatigue using machine learning techniques...
Sidenote, I only had the energy to skim through and not read your entire blog, so I’m sorry if any of the comments I made were redundant :).
@forestglip Instead of making a Machine Learning Model using your face and manually labelling it, which would take large amounts of energy and...
Found this article when looking psychwashing: Psychwashing: When Employers Use "Well-Being" To Hide Workplace Business As Usual Corporations are...
Thanks! Ref 89 leads to an interesting looking german study on doctor patient relationships in pwME. https://pubmed.ncbi.nlm.nih.gov/38062324/...
In the patient community, it seems somewhat common to refer to instances where PEM (or a crash) led to worsening of the condition which was...
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