Do they realise the GET study they are citing (PACE trial) had double the amount of adverse effects in GET compared to control and that was with a...
(Citing the PACE trial and other GET studies) ?? How can they ask for people who fit the CCC but exclude PEM (PESE). Or does “preexisting” here...
Yes. Don’t know where but it will be available.
hahhahahah brilliant
Thank you for the answer. Maybe i am getting a knee-jerk reaction against CFS and CFS/ME because I associate these terms with research and people...
As the title suggests I’m looking for resources on why the Name “CFS” is problematic and “ME” or “ME/CFS” is recommended. Specifically I’m in...
Swiss govt long covid advisory group not showing up with no explanation to meetings with swiss long covid organisations. [MEDIA]
So refreshing too see they have authors from many patient organisations.
I don’t know unfortunately. Looking at the author list it seems majoritarily Austrian with a couple of Swiss and Germans in too. In the case of...
Really impressed by this piece. Given it’s published in a Viennese journal, I’m suspicious WE&ME have something to do with it. Hope this will...
Some translated quotes: In the distinction from other diseases, the leading symptom of ME/CFS, post-exertional malaise (PEM), is of decisive...
Glad to hear it is going so well!
Axios Article:...
Couldn’t find any on s4me although it does seem like a very basic question so you are probably right. I thought it would be interesting to see...
Post-covid, I think the general estimate if you very roughly put together a lot of studies and surveys is around 1 in 100 people. I think pre...
I’m curious.
I would guess that biomarker is something unique to the disease that consistently differentiates between that disease and healthy people/people...
I don’t personally understand this well myself, but I think it’s important to distinguish between a biomarker and biological abnormalities....
More research funding will surely get us more data that we crucially need. And the rise of statistical analysis using more sophisticated...
Out of curiosity, how close can you come to proving a physical symptom has a psychological cause. Is there ever a case you can be 100% certain...
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