There’s probably a severity bias in who gets diagnosed. And also, with the majority of doctors in the healthcare system, having an ME diagnosis...
According to Tom Kindlon on bluesky the person who published this study has a significant Conflict of Interest.
Cool. Unfortunately my problems not long term fatigue, but an illness defined by PEM.
It seems to be a sort of consistent report that for some “strong” drugs tried, a significant subset of ME patients report a worsening of their...
Does it say how long after exercise the cognitive testing was done? Because if I overexert myself, I get a bout of what feels like adrenaline and...
My point wasn’t specifically about the name ME, more about the fact the Oxford criteria doesn’t have PEM.
Technically there isn’t but patients will end up stocking up on loads of drugs in most cases. Drugs for pain, sleeping, nausea/stomach problems,...
I’ve been thinking about this more, and perhaps this is pushed by pharmaceuticals. It’s much more profitable to have to “treat” every single...
Was there a control group? because otherwise this just fits with “natural recovery” trends.
I haven’t been following this chat, but saw a change.org petition shared on bluesky asking for Riley to step down. Incase it hasn’t beennshared...
New Documentary on Austrian National Television (45min) (In German) Much Suffering, Little Help – The Illness ME/CFS Trapped in an Invisible...
Yes fantastic read. Took me two or three goes with the brain fog but I really learnt a lot.
Now published as an Article in German....
Has it gotten better in the past couple months? I had to step away from it around 6 months ago because there was too much psychosomatic stuff,...
You’re welcome to create one, the way it was shared was ambiguous to me, and I wasn’t sure if it was a new initiative or something old resurfacing...
Posts split from United Kingdom: News from #MEAction Network UK Note: this is not an MEAction UK initiative. Rather it is the initiative of Adam...
Open letter by MEAction UK asking for use of stricter criteria in research. (Basically asking to stop using Fukuda)....
A lot of people in the local facebook groups seem to be convinced they will magically recover if they get send to a rehab clinic. The...
Joanne Hunt has published a lot of stuff in this vein. More focusing on structural, social, and political issues, but also often touching on the...
Swiss national radio had an 7 minute “investigation” that from the description seems good. (translated from german): Long Covid: Incorrect...
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