Neil Shapiro, Associate Director for Budget, NIH at ACD last week: "RECOVER Initiative has really been NIH's top priority in terms of advocating...
Moved post STAT News: 'Long Covid feels like a gun to my head' 'I have spent my career studying infectious diseases that fall under the heading...
Bloomberg Law: 'Kansas Sues Pfizer Over Covid-19 Vaccine’s Safety, Efficacy' 'The lawsuit was filed by state Attorney General Kris Kobach in...
Washington Post, Editorial Board: 'Long covid might presage a wave of disability claims. Get ready' 'Long covid is a looming potential challenge...
I’m skeptical too but surprised at the accuracy of the criticism, which to me indicates (to the leadership of this House Committee at least) that...
@Sean - I agree, which is why I wrote to NIHReform@mail.house.gov and first.opinion@statnews.com to clarify what is needed from this community's...
Also if any are interested in an op-ed on the NIH after the reform proposal, STAT News is interested in community thoughts (sent out to their...
Sharing a local report on the NASEM work (Minneapolis, MN). KSTP 5 News: “National Academies’ long COVID definition gives patients hope” “I’m...
(part 2) Sharing from the 22-page official plan release, on Page 17: '"Recently, there have been several instances of missteps in the NIH’s...
(mods feel free to move where most appropriate) 'House Energy & Commerce: 'Chair Rodgers Unveils Framework for NIH Reform, Requests Stakeholder...
Institute for New Economic Thinking: “Debilitating a Generation”: Expert Warns That Long COVID May Eventually Affect Most Americans ‘..Dr....
@forestglip - Possibly Atul Butte, Chief Data Scientist at University of California Health. He live-tweeted the conference, and I think (?) that...
As I didn’t see the recordings up yet, I shared a short thread on Twitter for any that would like to view in the meantime. This is probably...
Posts have been moved from a thread on the NIH ME/CFS intramural study @Laurie P the 4 patients that I know in the study all have POTS and said...
Did Jeannette state in her work (and blogs) if she was submitting this to anywhere (Office of Research Integrity with HHS, etc.)?
(sharing in here too, but Mods you can delete if you prefer just in other thread) KQED: 'National Academies Pushes for New Definition of Long...
KQED: 'National Academies Pushes for New Definition of Long COVID' 'Long COVID afflicts an estimated 17 million Americans. We’ll talk about the...
Dr. Jeanne Marrazzo (NIAID Director) at Demystifying Long COVID Conference last week in Boston on LC: "As you can tell I'm very interested in this...
Sharing this message I received today from an individual with HHS, if helpful to know for anyone still working on this here: "Our office did...
Medscape: 'MDs' One-Word Summary of Long COVID Progress: ‘Frustration' 'There is an urgent need for more funding, long COVID clinicians,...
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