This script is in no way perfect, but if any also want to request to amend 'effort preference' here was my high-level message with asking. Feel...
I wrote to Koroshetz: “I am writing today with concern on the recent NIH ME/CFS publication. I’m asking that the term “effort preference” be...
Also if any advise a reply / rebuttal / follow-up back let me know any thoughts (there are several other leaders CC’ed in the thread, ie Nath,...
Just sharing this message today from Koroshetz, for visibility, when I had asked for paper amendment of ‘effort preference’ term (mods I left in...
Just sharing this message today from Koroshetz, for visibility, when I had asked for paper amendment of ‘effort preference’ term. “Understand the...
@Jaybee00 Outreach was to Deeks, who CC'd Peluso on his response.
@Evergreen A few of us reached out to leaders at UCSF, and this intel was incorrect.
Apologies if I already shared this @Evergreen, if I hadn't, doing so now. I asked Nath and Koroshetz following the publication if they are...
Mods, feel free to move or delete if this was already shared (as I assume it was). Sharing this interview today from David Tuller with Michael...
Ah, I hadn't seen. Thanks for sharing this. It's definitely a canned answer they've formed then now.
You know my answer, but would be curious how he’d rebuttal if any ask him. His e-mail is avindra.nath@nih.gov Pretty sure he’s pretty over of my...
Giving visibility this message from Nath to another pwME today, who I don't think would mind that I'm sharing here since nothing is private here...
Someone affiliated with the study from the NIH messaged me today saying "We will be holding a research symposia in the next month or so where...
[just to quickly interject, I compiled media roundup of the NIH ME Intramural Study below - sharing for anyone browsing through this thread and...
Sharing in here if not already shared. Live Science: '''It took the rug right out from under my life': Milestone ME/CFS study begins to explain...
Appreciate spearheading this, @rvallee
Take a lap, buddy. 17 US patients, who are human beings, went through an awful lot and sacrificed their bodies / baselines in this study. Some of...
Thank you, @B_V
This report lead off the 5:30PM broadcast news tonight KSTP News Minneapolis - St. Paul "Patients, including from Minnesota, pack US Senate...
Sharing the recap from our local press. Minneapolis Star Tribune: "Follow up, funding critical on long COVID" "The entire Minnesota...
Separate names with a comma.
