Very helpful post. I had seen it, and then apparently erased it from my brain.
From part 2 of Jeanette's blog: Does the part in brackets mean that her analysis of virtual rewards won excludes the five patients she argues...
Yes, you're right.
You sign a user agreement that says you cannot share the data except with others registered with mapMECFS. So you can analyse the data and share...
In part 2 of Jeanette’s blog, this bit (that @forestglip and @bobbler mentioned above) stuck out: I don't think this is right. Participants won...
I find it interesting that you see this 1/3 figure being used by some (sorry, can't come up with other names, am shattered, but there was an...
I mentioned these van Campen severity ranges in an email to Dr Walitt - I wonder if this influenced this part of the Q&A the NIH subsequently...
I have only skimmed the draft, so just a couple of notes on this particular bit: For anyone who wants to quote any calculations based on data...
Thanks Trish. I remember doing it through thick brain fog. I had to check and double-check and triple-check and quadruple-check all the...
Just noticed that this letter on measuring improvement and deterioration with the Chalder Fatigue questionnaire is now Open Access:...
A preliminary scatter of hard task completion x physical function. Mistakes are possible so this should be double-checked by others with access...
Good news, Dr Walitt wrote back and directed me to a file for the EEfRT task in the mapMECFS datasets. It's under "Neurophysiology Data Files"...
Others with access to the data will be able to graph things for you better than I ever could! I think the standard deviations and numbers in...
The IDs in the EEfRT data (eg HV A, PI-ME/CFS B) do not appear in the mapMECFS data at all. The IDs in the publicly available data have been made...
The IDs are different in the publicly available data and the mapMECFS data. So I don't think you will be able to do this, unless I'm missing...
I looked at a few things you might expect to differ between groups if one group were having difficulty with the task. I hypothesised that a group...
I've made a correction to one of my posts above. 47% of patients had a lower success rate for hard tasks than all healthy volunteers.
Correction: My original post stated that 7/17 (41%) of patients had a lower success rate for hard tasks than all healthy volunteers. This should...
Sorry I was editing my post as realisation dawned that Murph's point could apply. I'll leave that to others to check.
I thought patient B might have been purposely giving himself breaks, as he had four tasks in the second half of his 53 trials where he only...
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