My second attempt, which addresses @Simon M 's 2nd point, but not his first, because his first is beyond me. Hopefully one or other of us will be...
Ooh I managed to do this bit.
Glad it made some sense. My brain can't follow this after chart-exertion, but other brains will and I trust they will reply and do what needs doing!
I've sent you a message! I wanted to do number 2 but my brain imploded at the thought of patients and healthies being mixed and at the thought of...
Does this help to visualise the fundamental problem with the effort task's validity when used to compare pwME and healthies? To me, it helps me...
Yes, they are reassuring - I felt it would be helpful to get clarity as there was speculation about the severity of patient participants. No,...
Short Form 36 Physical Function scores were not reported in the Walitt et al. 2024 “Deep phenotyping” paper, but I find them helpful to get a...
I'd add: - a belief that you can tell when the individual person in front of you is improving or deteriorating due to therapy versus when they're...
And to further clarify, all of the studies that have used a 2- or 3-point decrease in Chalder Fatigue Questionnaire score to indicate clinically...
You’re right to point this out – I realised in the middle of a rest last week that it would have been helpful if I had clarified that Adamson et...
When you click on the link to the letter (below) you'll see "Access options". On the right, beneath "Purchase content", it says "Rent with...
So sorry you're not able to access the letter and thanks for kind words. I can view it in Google Chrome but not in Microsoft Edge, so perhaps...
I've had a letter published in response to the Adamson et al article. It's called ‘Measuring improvement and deterioration in myalgic...
I have had a letter published in the Journal of the Royal Society of Medicine entitled ‘Measuring improvement and deterioration in myalgic...
Really sorry to hear your friend is so unwell. It must be worrying for you and for him. To give context to my comments, I was a Speech &...
For context, I’m a Speech & Language Therapist with severe ME. This is a general reply for the thread. I'm quoting some of @Jonathan Edwards '...
From what I can see (from a limited google!), home sleep studies are only valid for sleep apnoea e.g. So I'm not convinced they'd be of use....
For context, I have severe ME (housebound, not bedbound) and am/was a Speech & Language Therapist. I like the idea of trying to see what, if...
And yes, I am Kirke 2017! Not how I usually refer to myself, but thought it would be helpful to keep the post above clear.
Links to papers on patient surveys and to the surveys themselves below. In terms of patient-level evidence of possible harm from GET, there are...
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