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  1. Esther12
    Post

    Forward-ME Group Minutes - 13th March 2019

    Isn't Davie consistently appalling?
    Post by: Esther12, Apr 3, 2019 in forum: General ME/CFS news
  2. Esther12
    Post

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    I assumed it was TEDx taking action because their are so many problems with Crawley's talk, and it clearly breaches their guidelines. Some other...
    Post by: Esther12, Apr 3, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  3. Esther12
    Post

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    According to this playlist it is now a 'private video': https://www.youtube.com/playlist?list=PLz9sRi8Qg5wDPdB-eEOuvlUlWHtOsZtgl
    Post by: Esther12, Apr 3, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Esther12
    Post

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    There's also a broken link to it in the Paediatric CFS clinic's page:...
    Post by: Esther12, Apr 3, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  5. Esther12
    Post

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Looks like this video is now offline. Bristol still has a page promoting it, but with a broken link:...
    Post by: Esther12, Apr 3, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Esther12
    Post

    Trial By Error: Kaiser Permanente Changes Course

    Being honest with patients about how limited the current treatment options are sounds like a good thing to me.
    Post by: Esther12, Apr 2, 2019 in forum: General ME/CFS news
  7. Esther12
    Post

    NIH Request For Information: Soliciting Input on How Best to Advance ME/CFS research

    There is definitely still value in people writing as individuals. Sorry for not putting time into this. IMO these sorts of things are a really...
    Post by: Esther12, Apr 2, 2019 in forum: General ME/CFS news
  8. Esther12
    Post

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    Thanks for the updates and to everyone paying attention to the details of this.
    Post by: Esther12, Apr 2, 2019 in forum: General ME/CFS news
  9. Esther12
    Post

    B-Lymphocyte Depletion in Patients With ME/cfs: A Randomized, Double-Blind, Placebo-Controlled Trial (2019) Fluge et al

    Some PACE comments in the abstract, though I can't access the full paper on scihub yet:
    Post by: Esther12, Apr 2, 2019 in forum: ME/CFS research
  10. Esther12
    Post

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    WTF is that title? What are they referring to? Patients reporting a diagnosis of ME/CFS - as if wanting research to use a recognised criteria is...
    Post by: Esther12, Apr 1, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Esther12
    Post

    Possible useful link to Hacked off & the Leave campaign?

    There are so many problems with the UK media, but so much depends on getting people to understand that details that it's difficult to get people...
    Post by: Esther12, Apr 1, 2019 in forum: General ME/CFS news
  12. Esther12
    Post

    O'Dowd-Crawley early intervention study

    I'm sure that there's a worthwhile paper in this if anyone managed to piece it together.
    Post by: Esther12, Apr 1, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. Esther12
    Post

    Multiple Symptoms Study 3: pragmatic trial of a community based clinic for patients with persistent (medically unexplained) physical symptoms

    So now a “rational explanation” seems to be nothing more than a narrative that fits in with their prejudices and that they can manipulate some...
    Post by: Esther12, Apr 1, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Esther12
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    For people planning to send out a link to others who haven't been following this issue closely, I reckon the blog is probably less good than the...
    Post by: Esther12, Apr 1, 2019 in forum: Fundraising
  15. Esther12
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    It seems that those sorts of social media groups attract far wider groups that a specialist forum like this.
    Post by: Esther12, Mar 31, 2019 in forum: Fundraising
  16. Esther12
    Post

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    Clare McDermott is the corresponding author of this new paper with CureME at the London School of Hygiene & Tropical Medicine....
    Post by: Esther12, Mar 31, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  17. Esther12
    Post

    Private Eye - Paul Foot Awards: Nominations - want David Tuller?

    I'm an idiot and misread the closing date as 1st April.
    Post by: Esther12, Mar 29, 2019 in forum: Advocacy Projects and Campaigns
  18. Esther12
    Post

    Private Eye - Paul Foot Awards: Nominations - want David Tuller?

    Looks like this is only for those living near the Private Eye offices! edit: I'm an idiot and misread that as 1st April. Given that Phil Hammond...
    Post by: Esther12, Mar 29, 2019 in forum: Advocacy Projects and Campaigns
  19. Esther12
    Post

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    I'm not sure about this letter. Maybe, but I don't think we know that and a reference from 1990 doesn't do much to prove it. Does this Chalder...
    Post by: Esther12, Mar 29, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Esther12
    Post

    Trial By Error: Kaiser Permanente Changes Course

    Excellent!
    Post by: Esther12, Mar 29, 2019 in forum: General ME/CFS news
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