I remember having a few exchanges with him there - he really didn't seem to value debate, or take being criticised at all well, so I worry that my...
It is difficult, as the PACE team flit between presenting PACE as purely pragmatic, and something more. I think that it's generally best to give...
Thanks Suzy. It looks as if you've helped us dodge quite a few bullets there. All the work you and Mary Schweitzer have done on this has been...
I've just been reading an ICO decision notice that used some defensible but strong criticism on a forum to help justify a refusal to release PACE...
Did you mind? #sorry if it seemed patronising. I like to be babysat! If I didn't have people pointing out problems with what I posted I'd be in a...
Welcome to the forum @Diane O'Leary - thanks for joining the discussion of your paper.
My cynical speculations about the HRA are just on the right side of the line I've imagined for myself... Also, it's much easier to see how other...
QMUL, the PACE lot... I expect that there could have been a few quiet words from other interested parties. That they seem to have used some very...
I don't think that's right. I think it's more likely it was written by people who i) fell for some QMUL spin and ii) did not want to challenge the...
That's a strong claim about a major piece of research that would should shape understanding of the value of the treatments that they had developed.
Thanks for those e-mails. The pleasure I can from reading boring old PACE correspondence makes me realise I'm a true nerd. Is there any demand for...
I expect that lots of people with different forms of health problems end up being included within all the different ME/CFS criteria, even if some...
There are people who've said pacing led to them recovering, and improving to close to recovery. It shouldn't be promoted as something that can be...
That sounds less than impressive. Might be worth taking an exact quote of that for those looking to raise concern about the ethics of Stubhaug's...
Just the name and e-mail are starred, and that's what normally indicates required fields. I could be wrong, but I'd be surprised if her blog...
Looks like just name and e-mail is needed. I'd be surprised if she wanted to exclude patients!
They may have just not got to you before the weekend, so it might not be up until Monday now.
I think 'pacing' is really difficult to define, partly because it has become a tool patients feel they need to use in order to avoid being...
Paul Glasziou has been pretty bad for us, so I'd say that makes the blog even more impressive.
I probably should have posted that comment under her blog as a thanks to her.
Separate names with a comma.
