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  1. dave30th
    Post

    Weʼre raising £35,000 to Continue Vital ME Research, Keith Geraghty, 2021

    I have shared it and donated to Keith's effort as well. I take heart from his statement that he has received enough to allow him to continue.
    Post by: dave30th, Apr 6, 2021 in forum: Fundraising
  2. dave30th
    Post

    Guided graded exercise self-help for chronic fatigue syndrome: Long term follow up & cost-effectiveness following the GETSET trial, 2021, Clark et al

    yeah that's what I assume. as if those changes were real.
    Post by: dave30th, Apr 6, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. dave30th
    Post

    Guided graded exercise self-help for chronic fatigue syndrome: Long term follow up & cost-effectiveness following the GETSET trial, 2021, Clark et al

    The other thing is that the Journal of Psychosomatic Research just published a case study in which the journal's top editor and past top editor...
    Post by: dave30th, Apr 6, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. dave30th
    Post

    Guided graded exercise self-help for chronic fatigue syndrome: Long term follow up & cost-effectiveness following the GETSET trial, 2021, Clark et al

    yes, excellent question. What does that even mean? Cost-effective at doing what??
    Post by: dave30th, Apr 6, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. dave30th
    Post

    The Times: "The Sleeping Beauties by Suzanne O’Sullivan review — how the human mind can make us sick" by Tom Whipple, 2021

    What is the last paragraph? It's behind the paywall for me as well. And if that's what Tom is saying, it's likely the person who wrote the subhead...
    Post by: dave30th, Apr 5, 2021 in forum: Other psychosomatic news and research
  6. dave30th
    Post

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    Hi, I'm curious what the goal is here. Things don't work this way in the US, so I'm not quite sure what's at stake in having questions like this...
    Post by: dave30th, Apr 5, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  7. dave30th
    Post

    Trial By Error: CBT and Irritable Bowel Syndrome

    Does NHS cover these? Insurance largely doesn't here--or just a bit. And they can be like $5,000 a pair for decent ones.
    Post by: dave30th, Apr 5, 2021 in forum: Other psychosomatic news and research
  8. dave30th
    Post

    Trial By Error: CBT and Irritable Bowel Syndrome

    In the US, if it's prescribed, more likely health insurance will cover it. if it's just some program you download on your own, no chance.
    Post by: dave30th, Apr 5, 2021 in forum: Other psychosomatic news and research
  9. dave30th
    Post

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    This is not accurate. They always had primary outcomes that were subjective and secondary outcomes that were mostly subjective and then four that...
    Post by: dave30th, Apr 5, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  10. dave30th
    Post

    Trial By Error: CBT and Irritable Bowel Syndrome

    What a disgusting joke.
    Post by: dave30th, Apr 5, 2021 in forum: Other psychosomatic news and research
  11. dave30th
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I'd like to see it also.
    Post by: dave30th, Apr 5, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  12. dave30th
    Post

    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    Not a silly question! I see you're from SF. Basically, the UC system is always strapped for funds and the legislature is always cutting back. Many...
    Post by: dave30th, Apr 3, 2021 in forum: Fundraising
  13. dave30th
    Post

    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    Thanks, I appreciate that.
    Post by: dave30th, Apr 3, 2021 in forum: Fundraising
  14. dave30th
    Post

    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    oh, I hadn't even noticed that! I just meant to highlight the point that I do not have the legal protection that comes with tenure.
    Post by: dave30th, Apr 3, 2021 in forum: Fundraising
  15. dave30th
    Post

    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    I am very appreciative of the role Berkeley has played. I'm not tenured so have no guarantee of academic freedom--but they have protected me...
    Post by: dave30th, Apr 3, 2021 in forum: Fundraising
  16. dave30th
    Post

    BPS attempts at psychologizing Long Covid

    I don't think you're giving him enough credit, actually. He's young and working through his thoughts about how his field is addressing these...
    Post by: dave30th, Apr 2, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  17. dave30th
    Post

    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    Yes, that's my thinking. I have been clear that all money raised goes through Berkeley. Kate Kelland made it appear that I was running around the...
    Post by: dave30th, Apr 2, 2021 in forum: Fundraising
  18. dave30th
    Post

    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    I understand that. I wish I could. I'm really careful that the money goes to Berkeley and not to me, except in the form of salary and benefits....
    Post by: dave30th, Apr 2, 2021 in forum: Fundraising
  19. dave30th
    Post

    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    Thanks for the thought! I originally did it once a year because I hated doing it and didn't want to inflict it on myself or anyone else more than...
    Post by: dave30th, Apr 2, 2021 in forum: Fundraising
  20. dave30th
    Post

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    which study by Rowe about food proteins? Is there a link to that I missed?
    Post by: dave30th, Apr 1, 2021 in forum: Immune: Autoimmune and Mast Cell Disorders
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