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  1. Tom Kindlon
    Post

    ME Action: The EU committee on petition is preparing a resolution on ME

    I've now written to my 4 MEPs.
    Post by: Tom Kindlon, Jun 8, 2020 in forum: Advocacy Projects and Campaigns
  2. Tom Kindlon
    Post

    ME Action: The EU committee on petition is preparing a resolution on ME

    One person has just sent me this. --- Another message from this person: ---
    Post by: Tom Kindlon, Jun 8, 2020 in forum: Advocacy Projects and Campaigns
  3. Tom Kindlon
    Post

    Massachusetts ME/CFS & FM Association launching Research Club Support Group on Zoom this month

    I wasn't personally invited, if that's what you mean. I have never paid a subscription, I'm just on an email list that anyone can join. Their last...
    Post by: Tom Kindlon, Jun 5, 2020 in forum: General ME/CFS news
  4. Tom Kindlon
    Thread

    Massachusetts ME/CFS & FM Association launching Research Club Support Group on Zoom this month

    From an email I got today: Massachusetts ME/CFS & FM Support Groups Sessions on Zoom: New in June! Dear Tom, Massachusetts ME/CFS & FM Support...
    Thread by: Tom Kindlon, Jun 5, 2020, 15 replies, in forum: General ME/CFS news
  5. Tom Kindlon
    Post

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Yeah, I put "Discusses various distressing topics" when sharing the videos e.g. [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Jun 5, 2020 in forum: Advocacy Projects and Campaigns
  6. Tom Kindlon
    Post

    Comparison of Diagnostic Criteria - discussion thread

    I was told about the videos via these tweets! [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Jun 2, 2020 in forum: Diagnostic Criteria and Naming Discussions
  7. Tom Kindlon
    Post

    Comparison of Diagnostic Criteria - discussion thread

    Merged thread https://www.me-international.org/blogs/myalgice-videos-understanding-diagnosis
    Post by: Tom Kindlon, Jun 2, 2020 in forum: Diagnostic Criteria and Naming Discussions
  8. Tom Kindlon
    Post

    In progress: A systematic review & meta analysis of the incidence of, and risk markers for, [CFS] and [ME] in population studies, 2020, White

    The two Heim et al CDC child trauma studies used the so-called empiric criteria (Reeves et al, 2005). I had this letter published challenging...
    Post by: Tom Kindlon, Jun 2, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I like the article, but just sent them the following short note: The usual claim is that 25% have severe ME. However, that doesn't just include...
    Post by: Tom Kindlon, Jun 2, 2020 in forum: Long Covid news
  10. Tom Kindlon
    Post

    ICanCME Research Network

    [ATTACH] [MEDIA]
    Post by: Tom Kindlon, Jun 1, 2020 in forum: News from organisations
  11. Tom Kindlon
    Post

    In progress: A systematic review & meta analysis of the incidence of, and risk markers for, [CFS] and [ME] in population studies, 2020, White

    I'd say there's a good/very good chance that Peter White will use his own study from the Lancet. They attempted to measure their fitness after...
    Post by: Tom Kindlon, Jun 1, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    [MEDIA] [MEDIA] [MEDIA] [MEDIA]
    Post by: Tom Kindlon, May 30, 2020 in forum: Long Covid news
  13. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The #MEAction Network https://t.co/rp1NzNiQrt?amp=1
    Post by: Tom Kindlon, May 30, 2020 in forum: Long Covid news
  14. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    [MEDIA]
    Post by: Tom Kindlon, May 30, 2020 in forum: Long Covid news
  15. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    [MEDIA] https://www.nursingtimes.net/news/coronavirus/nhs-reveals-first-covid-19-rehab-hospital-named-after-mary-seacole-04-05-2020/ [MEDIA]
    Post by: Tom Kindlon, May 30, 2020 in forum: Long Covid news
  16. Tom Kindlon
    Post

    Patterns of daytime physical activity in patients with chronic fatigue syndrome, 2020, Chalder, Sharpe, White et al

    There is no control group. Here are some research studies that found no difference in variations in activity patterns when a control group was...
    Post by: Tom Kindlon, May 28, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  17. Tom Kindlon
    Post

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    They have managed to get a large amount of info across in the 10 Q and A's. Very impressive to see how up-to-date it is: possibly the majority of...
    Post by: Tom Kindlon, May 27, 2020 in forum: Training courses
  18. Tom Kindlon
    Post

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    https://www.meassociation.org.uk/2020/05/me-awareness-dialogues-for-a-neglected-illness-a-wellcome-project-by-natalie-boulton-and-josh-biggs-27-may...
    Post by: Tom Kindlon, May 27, 2020 in forum: Advocacy Projects and Campaigns
  19. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    COVID-19 and Post Viral Fatigue: Growing Recognition [MEDIA] I haven't watched this video myself so far, but saw a few people praising it. I...
    Post by: Tom Kindlon, May 27, 2020 in forum: Long Covid news
  20. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    "COVID-19 May Cause Hallmark ME/CFS Post-Exertional Malaise" https://themighty.com/2020/05/covid-19-me-cfs-post-exertional-malaise/ Note that...
    Post by: Tom Kindlon, May 26, 2020 in forum: Long Covid news
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