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  1. Tom Kindlon
    Post

    EU Petition 2019 - opportunity to lobby for funding for ME research

    I followed the link about the probiotic. It looks like the money is going to CFS. I'm not saying this is the most exciting thing ever....
    Post by: Tom Kindlon, Sep 11, 2019 in forum: Petitions
  2. Tom Kindlon
    Post

    EU Petition 2019 - opportunity to lobby for funding for ME research

    I wonder whether it might be possible to do a freedom of information request to get some details of ME/CFS applications over the years? I think...
    Post by: Tom Kindlon, Sep 11, 2019 in forum: Petitions
  3. Tom Kindlon
    Post

    EU Petition 2019 - opportunity to lobby for funding for ME research

    [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Sep 10, 2019 in forum: Petitions
  4. Tom Kindlon
    Post

    ME advocates & groups you can endorse (=vote for) in the WegoHealth awards 2019

    [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Sep 6, 2019 in forum: General ME/CFS news
  5. Tom Kindlon
    Post

    Open Institute for Neuro-Immune Medicine: ME/CFS: Detecting Mycotoxin Subgroup

    To facilitate sharing: [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Sep 5, 2019 in forum: Recruitment into current ME/CFS research studies
  6. Tom Kindlon
    Post

    USA:NANDSC Working Group for ME/CFS Research report, September 2019

    To facilitate sharing: [MEDIA] [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Sep 4, 2019 in forum: General ME/CFS news
  7. Tom Kindlon
    Thread

    USA:NANDSC Working Group for ME/CFS Research report, September 2019

    From: NIH MECFS Information List Sent: Wednesday 4 September 2019 15:36 Subject: News from NIH: Report of the NANDSC Working Group for ME/CFS...
    Thread by: Tom Kindlon, Sep 4, 2019, 25 replies, in forum: General ME/CFS news
  8. Tom Kindlon
    Post

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    To facilitate sharing online: [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Sep 2, 2019 in forum: Resources
  9. Tom Kindlon
    Post

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    To facilitate sharing online: [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Sep 2, 2019 in forum: Resources
  10. Tom Kindlon
    Post

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    To facilitate sharing online: [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Sep 2, 2019 in forum: Resources
  11. Tom Kindlon
    Post

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    To facilitate sharing online: [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Sep 2, 2019 in forum: Resources
  12. Tom Kindlon
    Post

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    To facilitate sharing online: [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Sep 2, 2019 in forum: Resources
  13. Tom Kindlon
    Post

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    Here's something frustrating that happened with the AHRQ review in the US: [ATTACH] If I recall correctly, the employment data from the PACE...
    Post by: Tom Kindlon, Sep 1, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  14. Tom Kindlon
    Post

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    Some journal articles are not listed in some databases such as PubMed, so can be missed in searches. It depends what algorithms they are using. A...
    Post by: Tom Kindlon, Sep 1, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  15. Tom Kindlon
    Thread

    Old BBC documentary, "Strange Days", which takes a sceptical look at alternative medicine

    I wasn't sure where to post this. [MEDIA] [MEDIA] [MEDIA]
    Thread by: Tom Kindlon, Sep 1, 2019, 0 replies, in forum: Other health news and research
  16. Tom Kindlon
    Post

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    There will be at least one other opportunity when the draft guidelines are posted and people can comment on them. Last time round they seemed to...
    Post by: Tom Kindlon, Aug 31, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  17. Tom Kindlon
    Post

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    [MEDIA] [MEDIA] [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Aug 31, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  18. Tom Kindlon
    Post

    ME/CFS success story: Lightning Process on Youtube 2019

    In case anyone would like to share these on social media: [MEDIA] [MEDIA] [MEDIA] [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Aug 28, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. Tom Kindlon
    Post

    Looking for a copy of Report from the National Task Force on Chronic Fatigue Syndrome , 1994.

    Here is a House of Commons report from the late 1990s which wasn't great as I recall.
    Post by: Tom Kindlon, Aug 27, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Tom Kindlon
    Post

    Looking for a copy of Report from the National Task Force on Chronic Fatigue Syndrome , 1994.

    In case anyone wants a copy, here is a copy of the disastrous 1996 royal colleges report on CFS
    Post by: Tom Kindlon, Aug 27, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
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