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  1. Tom Kindlon
    Post

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    I saw this previously in a magazine for a local group in England in the early- to mid-2000s. Note that PDW having a weird view of recovery doesn't...
    Post by: Tom Kindlon, Nov 13, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Tom Kindlon
    Post

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    I haven't read the full paper yet. It would have been interesting to have some data on the questionnaire scores for those who took part. Based on...
    Post by: Tom Kindlon, Nov 13, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Tom Kindlon
    Post

    Persistent fatigue following SARS-CoV-2 infection is common and independent of severity of initial infection July 2020 Townsend et al

    The full paper has now been published via @rvallee [MEDIA]
    Post by: Tom Kindlon, Nov 12, 2020 in forum: Long Covid research
  4. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    [MEDIA]
    Post by: Tom Kindlon, Nov 11, 2020 in forum: Long Covid news
  5. Tom Kindlon
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    To facilitate sharing of Jonathan Edwards' submission [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Nov 11, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  6. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    [MEDIA]
    Post by: Tom Kindlon, Nov 11, 2020 in forum: Long Covid news
  7. Tom Kindlon
    Thread

    CFS/ME database project (Zachary Elwood)

    I got this by email today; he also contacted me on Twitter. He said I could share this, if I wanted: Regarding my CFS/ME database project...
    Thread by: Tom Kindlon, Nov 10, 2020, 0 replies, in forum: General ME/CFS news
  8. Tom Kindlon
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Feel free to delete if it has been posted already [MEDIA]
    Post by: Tom Kindlon, Nov 10, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  9. Tom Kindlon
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Nov 10, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  10. Tom Kindlon
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I thought I'd give these a spin for those who never saw them before: [MEDIA]...
    Post by: Tom Kindlon, Nov 9, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  11. Tom Kindlon
    Post

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    List of interviewees for "How does the disease start?" in order: Dr Nina Muirhead Grace R Lydia Dr Ben Marsh Linda Catherine Hale Joan McParland...
    Post by: Tom Kindlon, Nov 9, 2020 in forum: Advocacy Projects and Campaigns
  12. Tom Kindlon
    Post

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    *Quick list of interviewees for "Reduced Function" in order: Dr Ben Marsh Dr Nina Muirhead "R" Grace Lydia Linda Graham McPhee Naomi Whittingham...
    Post by: Tom Kindlon, Nov 7, 2020 in forum: Advocacy Projects and Campaigns
  13. Tom Kindlon
    Post

    Patient Perspectives on Self-Management Technologies for Chronic Fatigue Syndrome (2019) Tabby Davies, Simon Jones, Ryan Kelly

    This paper is cited by this thesis...
    Post by: Tom Kindlon, Nov 7, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Tom Kindlon
    Thread

    Symptoms, function and quality of life in myalgic encephalomyelitis/CFS: an Australian based, cross-sectional study, 2019, Donnelly

    From: Dr. Marc-Alexander Fluks B.Sc. Thesis Kate Donnelly Source: University of Tasmania Date: December 2019, online September 2020 URL:...
    Thread by: Tom Kindlon, Nov 7, 2020, 2 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Tom Kindlon
    Post

    Whitney Dafoe Updates

    [MEDIA]
    Post by: Tom Kindlon, Nov 6, 2020 in forum: General ME/CFS news
  16. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Nov 6, 2020 in forum: Long Covid news
  17. Tom Kindlon
    Post

    Whitney Dafoe Updates

    Post by: Tom Kindlon, Nov 6, 2020 in forum: General ME/CFS news
  18. Tom Kindlon
    Post

    Trans-NIH ME/CFS Working Group Telebriefings 2020-2021 (next telebriefing March 30 2021)

    Just highlighting this is on tomorrow.
    Post by: Tom Kindlon, Nov 4, 2020 in forum: ME/CFS research news
  19. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Merged thread Free full text: http://www.ieti.net/tes/2020V4I103.html How would a post-virus chronic fatigue syndrome affect the performance of...
    Post by: Tom Kindlon, Nov 3, 2020 in forum: Long Covid news
  20. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    [MEDIA]
    Post by: Tom Kindlon, Nov 3, 2020 in forum: Long Covid news
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