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  1. Tom Kindlon
    Post

    Ros Vallings (NZ) to give series of talks in Ireland - May 2019

    My 2 cents: I've said to people before that it's generally not progressive, once people are diagnosed; can reduce their workload and...
    Post by: Tom Kindlon, Jun 2, 2019 in forum: Advocacy Projects and Campaigns
  2. Tom Kindlon
    Post

    SMCI RAMSAY 2018: “Whole genome sequencing and analysis of ME/CFS”, Worthey

    I noticed in the latest newsletter of the Solve ME/CFS Initiative it says: It's nice to see people with the illness researching it.
    Post by: Tom Kindlon, Jun 2, 2019 in forum: ME/CFS research
  3. Tom Kindlon
    Post

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    [MEDIA] [MEDIA]
    Post by: Tom Kindlon, May 30, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Tom Kindlon
    Post

    A general thread on the PACE trial!

    [MEDIA] [MEDIA]
    Post by: Tom Kindlon, May 30, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Tom Kindlon
    Thread

    Sickness, Stigma and Spiritual Awakening: A Transpersonal Paradigm for Women with Contested Illnesses Paperback

    New book: The author, who I know a little from Ireland, has asked me to highlight the book. She recognises it is very expensive but hoped that...
    Thread by: Tom Kindlon, May 9, 2019, 0 replies, in forum: General ME/CFS news
  6. Tom Kindlon
    Post

    News from NIH: ME/CFS Telebriefing- April 9, 2019

    https://www.nih.gov/research-training/medical-research-initiatives/mecfs/cfs-advocacy-call-april-2019 [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Apr 26, 2019 in forum: General ME/CFS news
  7. Tom Kindlon
    Post

    Stuart Murdoch (of Belle and Sebastian)

    [ATTACH] [MEDIA]
    Post by: Tom Kindlon, Apr 22, 2019 in forum: General ME/CFS news
  8. Tom Kindlon
    Thread

    A possible link between recurrent upper respiratory tract infections and lower cytokine production in Q fever fatigue syndrome (Raijmakers et al,2019)

    Research Article A possible link between recurrent upper respiratory tract infections and lower cytokine production in patients with Q fever...
    Thread by: Tom Kindlon, Apr 21, 2019, 0 replies, in forum: ME/CFS research
  9. Tom Kindlon
    Post

    Advances in ME/CFS: Past, Present and Future; Friedman, 2018-19

    [MEDIA]
    Post by: Tom Kindlon, Apr 21, 2019 in forum: General ME/CFS news
  10. Tom Kindlon
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Over the last few hours, I have posted the following in 60-70 (?) Facebook groups: [MEDIA]
    Post by: Tom Kindlon, Apr 18, 2019 in forum: Fundraising
  11. Tom Kindlon
    Thread

    Open The NIH Intramural Post-Infectious ME/CFS Study: A Patient-Study Participant Perspective (from the e-newsletter of the Solve ME/CFS Initiative)

    I would have preferred to share a link to where they have posted this but I can't find any such link. Here are their social media accounts:...
    Thread by: Tom Kindlon, Apr 14, 2019, 11 replies, in forum: Recruitment into current ME/CFS research studies
  12. Tom Kindlon
    Thread

    Results of a survey of 151 families with ME on their experiences of the NHS

    https://2tired.weebly.com/home/dismissal-of-young-people-with-me-by-nhs-professionals [MEDIA] [MEDIA]
    Thread by: Tom Kindlon, Apr 13, 2019, 2 replies, in forum: General ME/CFS news
  13. Tom Kindlon
    Thread

    Frontiers in Medicine is interested in doing a special edition on "ME/CFS -The Severely Affected" if there is sufficient interest

    [MEDIA] [MEDIA]
    Thread by: Tom Kindlon, Apr 12, 2019, 8 replies, in forum: General ME/CFS news
  14. Tom Kindlon
    Thread

    BACME CFS/ME National Services Survey Feb 2018 (Report Published March 2019)

    https://www.bacme.info/sites/bacme.info/files/BACME%20CFS%20ME%20National%20services%20survey%20March19.pdf [MEDIA] [MEDIA]
    Thread by: Tom Kindlon, Apr 9, 2019, 20 replies, in forum: General ME/CFS news
  15. Tom Kindlon
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    What I and some others have done before with other appeals is to email messages to local and national groups. Different searches will show up...
    Post by: Tom Kindlon, Apr 7, 2019 in forum: Fundraising
  16. Tom Kindlon
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    The Irish ME/CFS Association just has one social media account currently, a Twitter account. We have retweeted a number of tweets on this. We will...
    Post by: Tom Kindlon, Apr 7, 2019 in forum: Fundraising
  17. Tom Kindlon
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    [MEDIA]
    Post by: Tom Kindlon, Apr 7, 2019 in forum: Fundraising
  18. Tom Kindlon
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I haven't read this thread so far. But if people want to reach a lot of people with ME/CFS, there are a lot of Facebook groups that could be...
    Post by: Tom Kindlon, Mar 31, 2019 in forum: Fundraising
  19. Tom Kindlon
    Post

    Otago University (NZ) is fundraising for Prof. Tate's team's ME research

    In case anyone wants to share the appeals for funding: [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Mar 31, 2019 in forum: Fundraising
  20. Tom Kindlon
    Post

    The Squeaky Wheel: the SMCI’s Professional Advocate Emily Taylor on Strategically Making Noise for Chronic Fatigue Syndrome

    [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Mar 31, 2019 in forum: Advocacy Action Alerts
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