Yep all the things that claim to be there to help are just extra energy and being played. Having a condition where people can pretend or choose...
’priming’ you mean? So that when someone jollily replies to someone’s comment with their story of recovery in a certain tone and that person says...
yep. This was a good posting and I think it’s very insightful given other news about NIH (and wondering whether that is good or could be used for...
No your advice works but it’s probably worth me noting what it was. MEA fb makes a post about the article. Then as they often seem to do these...
Now I know his background is rheumatology and nothing to do with neuro the idea of this being with intentions to find some ‘good cure that might...
But MEA need to protect their fb users if they do a thread where she is mentioned by them agsin I think - plus there I think were many many more...
I think that next time MEA mention her in an article or comments the sensible thing is to warn readers of this likelihood before she does begin...
Yes I think she basically was replying to most comments with whatever spiels - like an antagonist might I now see in hindsight - then went back...
I think we need to begin to have some good psychologist noting the long term common sense and obvious harms this therapy and assumption causes it...
It would be an awful thing to do for many reasons, but putting other conditions at their various stages onto said scale would provide anchor...
I saw that post. She almost replied to every comment (even though the article was nothing to do with either her or her area) I've just edited this...
oops lacking insight a bit there is it not? But is this lightening process type thing related in which case I guess that is the brain 'retrain'...
We also need people to underline that we aren't 'unfit'. Which seems to have been turned into a dirty word (ambiguous meanings used again) and...
Exactly. I think that whether there are clinics that are ME-specific or some sort of other format (that provides a conduit to EDIT: and brings up...
@Trish and many others And yes, we do seem to have an issue that is well-encapsulated in the reading of this paragraph. Ironically the sentence...
I agree. And reading it I find the order in which the sentences were composed into that paragraph insightful. I don't understand why the lines I...
No indeed. Which sort of should make things more fixable. I note you posted in the MEA PROMS research and agree that it is important that we all...
And @Trish Im a bit divided on this. I absolutely agree that those just wanting to plonk the same orthodoxy on it all need shifting out...
To ask the obvious question - and this applies to UK as much too: of the professions that we've ended up being landed dealing with, which of them...
Yep they've made it seem like a country-based comparison rather than a condition-based one. And of course that is the classic reframe the set...
Separate names with a comma.