Yep this is just a long anecdote exampling how there are some who still don't/won't get that there is another definition of 'can't' .. which is...
Another classic: "It is important that you practise walking with the nurses to and from the toilet/bathroom where possible, to get you back into...
I've found this elsewhere for post-op for something else. I think there is more going on and don't really know from the phrase 'research' whether...
truth is I think there are probably a lot of others it doesn’t work for who are just more able to walk away and not have to say anything, it’s...
are they claiming as for ME/CFS that it is all about them caring about the pwme and not the recipient issue?
Here is the other thing along the lines of agreement and informed consent. CBT was supposed to be an add-on (that wasn't needed to be in the...
Thank you for raising this. Clarity is required in order that what might have been the correct intention isn't distorted into something quite...
Without the correct methodology then no. The issue for ME / CFS being as vulnerable as it is has always been due to the fact that we can 'do' but...
Add in the additional problem that we've now all realised those of us who gave something a go as guinea pigs at least thought that what the...
It is very naughty too if they are actually using care / activity For ME/CFS those are polar opposites. The care plan that @Kitty describes is...
All of this is really disturbing to me. I have inadvertently seen it creep in, in layman's terms in language used in other areas albeit the...
Link to article: BACME: ME/CFS charities work with psychologising organisation (thecanary.co) I've picked out the following as the intro, but...
if we have an idea more specifically of what we think is needed /could be useful, then perhaps phrasing a question along those terms is the...
Agreed there are interesting aspects to this. I just don't know how this question can be asked at the same time as the others and it not leading...
Agreed. I struggle for words that will get this across to others with the right nuance but there are certain positions and certain aspects that...
On that note. And maybe it is cloud-cuckoo land, but there is stuff we can do if we start actually thinking like this. The 'what's in it for me'...
And a lot of people will go to somewhere or someone with an intent of being quite 'transactional', they want something and they have a plan to get...
Of course what you are talking about is: ethics. There is genuine denial, which I don't doubt is also the case. And then there is also 'don't...
I've copied the following quote from David Tuller's interview with George Monbiot, Trial By Error: Guardian Columnist George Monbiot Discusses His...
Biographical repair from the same people who keep the foot on the neck via misinformation that means we live in epistemic injustice where everyone...
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