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  1. NelliePledge
    Post

    Painkiller effectiveness for people with ME/CFS

    I can’t take ibuprofen at all due to being on anti hypertension medication (before being on the meds I would definitely use ibuprofen for any kind...
    Post by: NelliePledge, Oct 24, 2024 in forum: Pain and Inflammation
  2. NelliePledge
    Post

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence, 2024, Barry et al.

    You might think that but Cochrane couldn’t possibly comment. (Reference is to Francis Urqhart for those not au fait with 1990s BBC drama)
    Post by: NelliePledge, Oct 24, 2024 in forum: ME/CFS research
  3. NelliePledge
    Post

    'You'll know you're getting better when you start getting colds & flu again' - anyone else come across this?

    Definitely I’m worse if I get any kind of bug. To give my worst example in recent years Covid knocked me back for 3-4 weeks and then several more...
    Post by: NelliePledge, Oct 24, 2024 in forum: General and other signs and symptoms
  4. NelliePledge
    Post

    Painkiller effectiveness for people with ME/CFS

    Maybe say over the counter painkillers as there are other prescription painkillers people use and supplements like CBD
    Post by: NelliePledge, Oct 23, 2024 in forum: Pain and Inflammation
  5. NelliePledge
    Post

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Many thanks to @Karen Hargrave and the group at #ThereForME, now a signatory of the open letter to Cochrane.
    Post by: NelliePledge, Oct 23, 2024 in forum: Petitions
  6. NelliePledge
    Post

    Analyses of the economic costs and impacts of chronic illnesses like ME/CFS and Long Covid

    Yes the McCrone et al PACE paper
    Post by: NelliePledge, Oct 23, 2024 in forum: Resources
  7. NelliePledge
    Post

    United Kingdom: News from Forward-ME Group

    Welcome to the forum @WAMES enquiries I hope someone here might be able to help point you towards some useful material on “dysregulation” to...
    Post by: NelliePledge, Oct 23, 2024 in forum: News from organisations
  8. NelliePledge
    Post

    Structural and functional brain markers of cognitive impairment in healthcare workers following mild [COVID], 2024, González-Rosa+

    Why wouldn’t they have tested a separate group of people with moderate/severe fatigue
    Post by: NelliePledge, Oct 22, 2024 in forum: Long Covid research
  9. NelliePledge
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    Most people with any severity of ME will get PEM from preparation to travel and the actual travel. But if you then have to be in a busy...
    Post by: NelliePledge, Oct 22, 2024 in forum: Moderated Threads
  10. NelliePledge
    Post

    What do we actually know about orthostatic intolerance?

    Orthostatic intolerance isn’t dependent on having low blood pressure. I have hypertension. I don’t know if my bp is increased or decreased when...
    Post by: NelliePledge, Oct 22, 2024 in forum: Orthostatic intolerance
  11. NelliePledge
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    Is it beyond the realms of possibility for a Dr or small team from St Marks to travel the 100 miles instead of Karen. that may be outside normal...
    Post by: NelliePledge, Oct 22, 2024 in forum: Moderated Threads
  12. NelliePledge
    Post

    What do we actually know about orthostatic intolerance?

    I feel there’s some link to sleep timing as well, I find my mental and physical capacity probably at best 11pm onwards. I can manage ok in...
    Post by: NelliePledge, Oct 22, 2024 in forum: Orthostatic intolerance
  13. NelliePledge
    Post

    News from Scandinavia

    So sorry for them
    Post by: NelliePledge, Oct 22, 2024 in forum: Regional news
  14. NelliePledge
    Post

    Ignored, blamed, and sometimes left to die – leading expert ME explains origins of a modern medical ‘scandal’, Chris Ponting, The Conversation, 2024

    Thanks for sharing this All I can say is I’m sending a big hug to you and to Chris
    Post by: NelliePledge, Oct 21, 2024 in forum: General ME/CFS news
  15. NelliePledge
    Post

    Feasibility of snapshot testing using wearable sensors to detect cardiorespiratory illness (COVID infection in India), 2024, Olivia K. Botonis et al

    Using wearables since 2021 :whistle: Not rocket science……..
    Post by: NelliePledge, Oct 19, 2024 in forum: Epidemics (including Covid-19, not Long Covid)
  16. NelliePledge
    Post

    Covid-19 vaccines and vaccinations

    I was looking on my online medical records the other day for something else spotted that my record had been updated to reflect my flu/c19 jabs. I...
    Post by: NelliePledge, Oct 19, 2024 in forum: Epidemics (including Covid-19, not Long Covid)
  17. NelliePledge
    Post

    The Concept of ME/CFS

    Yes.
    Post by: NelliePledge, Oct 19, 2024 in forum: Diagnostic Criteria and Naming Discussions
  18. NelliePledge
    Post

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    That insinuation I believe was actually operationalised in the PACE manual that dictated practice in the CFS/ME clinics. even in 2016,when...
    Post by: NelliePledge, Oct 18, 2024 in forum: Psychosomatic theories and treatments discussions
  19. NelliePledge
    Post

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    If it looks like a duck :whistle:
    Post by: NelliePledge, Oct 18, 2024 in forum: Psychosomatic theories and treatments discussions
  20. NelliePledge
    Post

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Hence the description as “update”
    Post by: NelliePledge, Oct 18, 2024 in forum: Petitions
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