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  1. Dolphin
    Post

    SARS-CoV-2 spike protein induces endothelial inflammation via ACE2 independently of viral replication, 2023, Montezano et al.

    I wonder whether something similar could happen with other viruses that are known to trigger ME/CFS? I haven’t read the paper just saw some...
    Post by: Dolphin, Sep 3, 2023 in forum: Long Covid research
  2. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Note how it says “last participant recruitment campaign”: if people are going to try things to highlight it to others, best not delay too long.
    Post by: Dolphin, Sep 3, 2023 in forum: Recruitment into current ME/CFS research studies
  3. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Posted on DecodeME’s Facebook page yesterday: We believe there are no better spokespeople on ME/CFS than the people who live with it. For our...
    Post by: Dolphin, Sep 3, 2023 in forum: Recruitment into current ME/CFS research studies
  4. Dolphin
    Post

    Fundraising for ME/CFS research - opportunities, problems

    I'm not sure how many people are interested in this but I found this information about bequests to charities in different countries. From:...
    Post by: Dolphin, Sep 2, 2023 in forum: General Advocacy Discussions
  5. Dolphin
    Post

    News from The Netherlands

    https://www.nporadio1.nl/fragmenten/argos/210fbc09-7100-494d-8447-217051db78b7/2023-09-02-van-hoop-tot-wanhoop-grote-heibel-over-studies-naar-ziekt...
    Post by: Dolphin, Sep 2, 2023 in forum: Regional news
  6. Dolphin
    Post

    Long Covid in the media and social media 2023

    One in Five Doctors With Long COVID Can No Longer Work: Survey Claire Sibonney August 31, 2023 https://www.medscape.com/viewarticle/996030
    Post by: Dolphin, Sep 2, 2023 in forum: Long Covid news
  7. Dolphin
    Post

    News from Germany

    Press release from Germany:...
    Post by: Dolphin, Sep 1, 2023 in forum: Regional news
  8. Dolphin
    Post

    Developing a blood cell-based diagnostic test for ME/CFS using peripheral blood mononuclear cells, 2023, Xu, Morten et al

    Merged thread https://onlinelibrary.wiley.com/doi/10.1002/advs.202302146 Research Article Open Access Developing a Blood Cell-Based Diagnostic...
    Post by: Dolphin, Sep 1, 2023 in forum: ME/CFS research
  9. Dolphin
    Post

    Fundraising for ME/CFS research - opportunities, problems

    I forgot Dr Gordon Parish who had a trust fund which supported ME Research UK. THE JUDITH JANE MASON & HAROLD STANNETT WILLIAMS MEMORIAL...
    Post by: Dolphin, Sep 1, 2023 in forum: General Advocacy Discussions
  10. Dolphin
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    Another article on this study “A Protein That Zaps Cellular Energy May Underlie Chronic Fatigue”...
    Post by: Dolphin, Sep 1, 2023 in forum: ME/CFS research
  11. Dolphin
    Post

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    ME Research UK DecodeME is the largest ME/CFS study in the world, and, very importantly, is co-produced by people with lived experience of...
    Post by: Dolphin, Aug 31, 2023 in forum: ME/CFS research
  12. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    “Over 23,000“ completed the questionnaire before this newsletter but 17,074 of them were included in the questionnaire paper having completed the...
    Post by: Dolphin, Aug 31, 2023 in forum: Recruitment into current ME/CFS research studies
  13. Dolphin
    Post

    Patient and Public Involvement opportunities in ME/CFS and other research

    ME Research UK have plugged this in a Facebook post today Also on Twitter/X
    Post by: Dolphin, Aug 31, 2023 in forum: ME/CFS research
  14. Dolphin
    Post

    News from Canada

    En français: Alain Moreau: La signature biologique laissée dans l’organisme par la fibromyalgie (le 12 mai) [MEDIA] #fibromyalgie...
    Post by: Dolphin, Aug 31, 2023 in forum: Regional news
  15. Dolphin
    Thread

    Long term outcome in patients with Functional Neurological Disorders, 2022, Siafaka

    https://www.researchgate.net/profile/Vanita-Shukla-2/publication/365409058_Long_term_follow_up_FND_pdf/data/6373ddff37878b3e87b32593/Long-term-foll...
    Thread by: Dolphin, Aug 31, 2023, 4 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  16. Dolphin
    Post

    COMET initiative: Core Outcome Set for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

    Post by: Dolphin, Aug 30, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  17. Dolphin
    Thread

    Violation of the Dutch Code of Ethics for Psychologists with current CFS guideline, 2023, Bloks & Khouri

    Violation of the Dutch Code of Ethics for Psychologists with current CFS guideline Date: 25 August 2023 Authors: M. Bloks (General Health...
    Thread by: Dolphin, Aug 30, 2023, 4 replies, in forum: General ME/CFS news
  18. Dolphin
    Post

    Ireland: Dr Jack Lambert

    [MEDIA] Dr John Jack Lambert - Long COVID CRYPTO-INFECTIONS CONFERENCE 2023 LYME DISEASE & OTHER HIDDEN INFECTIONS: MICROBIAL PERSISTENCE...
    Post by: Dolphin, Aug 30, 2023 in forum: Other clinics and doctors
  19. Dolphin
    Post

    Fundraising for ME/CFS research - opportunities, problems

    I’m aware of some ME charities getting substantial (6 figure in ST£ or $) bequests in the last number of years e.g. - The 25% ME Group - ANZMES -...
    Post by: Dolphin, Aug 30, 2023 in forum: General Advocacy Discussions
  20. Dolphin
    Thread

    "Autonomy, dignity & independence" (Emerge Australia)

    Autonomy, dignity & independence Html https://www.emerge.org.au/autonomy-dignity-and-independence/ Pdf...
    Thread by: Dolphin, Aug 29, 2023, 2 replies, in forum: Resources
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