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  1. Dolphin
    Post

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    This 93-second news item is on a YouTube channel that has 12.2 million subscribers! It uses the footage from Sky News that some of us have...
    Post by: Dolphin, Aug 29, 2023 in forum: ME/CFS research
  2. Dolphin
    Thread

    Thesis Investigating the potential role of circulatory extracellular vesicles in myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Yran

    Via Dr. Marc-Alexander Fluks Source: University of Oslo Date: May 2023 URL:...
    Thread by: Dolphin, Aug 29, 2023, 4 replies, in forum: ME/CFS research
  3. Dolphin
    Post

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    This is a thread on a paper on the results from Armin labs, which promotes itself a lot for Lyme and tick-borne infections in Europe. There were...
    Post by: Dolphin, Aug 29, 2023 in forum: General ME/CFS news
  4. Dolphin
    Post

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    I don't have another link for this that discusses the documentary in English Documentary: Undercover in German Lyme Clinics (2017) Short...
    Post by: Dolphin, Aug 29, 2023 in forum: General ME/CFS news
  5. Dolphin
    Post

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    I’m not sure the links are that strong with health insurance companies (like Bupa) more disability insurers. A confusing term is Permanent Health...
    Post by: Dolphin, Aug 29, 2023 in forum: General ME/CFS news
  6. Dolphin
    Post

    USA: Mount Sinai PACS clinic and Dr David Putrino

    Post by: Dolphin, Aug 29, 2023 in forum: USA clinics and doctors
  7. Dolphin
    Post

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    I had to search around a bit to find the fundraising page: https://www.justgiving.com/page/damien-okane-me
    Post by: Dolphin, Aug 29, 2023 in forum: Regional news
  8. Dolphin
    Post

    Event: NASEM: Toward a Common Research Agenda in Infection-Associated Chronic Illnesses: A Workshop

    The National Academies of Science, Engineering and Medicine (NASEM) recently held a workshop that featured talks from PolyBio-supported scientists...
    Post by: Dolphin, Aug 28, 2023 in forum: 'Conditions related to ME/CFS' news and research
  9. Dolphin
    Post

    Opinion Is fibromyalgia an autoimmune disorder?, 2023, Clauw, Shoenfeld et al

    Sad. My impression is that not much is raised privately for fibromyalgia research by charities and the like worldwide particularly related to the...
    Post by: Dolphin, Aug 28, 2023 in forum: 'Conditions related to ME/CFS' news and research
  10. Dolphin
    Post

    Trial Report A multicenter virome analysis of blood, feces, and saliva in myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Briese et al.

    “More explorations of viruses in ME/CFS” @MEResearchUK summary for laypeople of “A multicenter virome analysis of blood, feces, and saliva in...
    Post by: Dolphin, Aug 28, 2023 in forum: ME/CFS research
  11. Dolphin
    Thread

    Opinion Is fibromyalgia an autoimmune disorder?, 2023, Clauw, Shoenfeld et al

    https://www.sciencedirect.com/science/article/abs/pii/S1568997223001581 Autoimmunity Reviews Available online 25 August 2023, 103424 In Press,...
    Thread by: Dolphin, Aug 28, 2023, 3 replies, in forum: 'Conditions related to ME/CFS' news and research
  12. Dolphin
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I hope one or move statistics relating to ME/CFS following Covid are realised by the team before recruitment closes as it is a useful hook to get...
    Post by: Dolphin, Aug 26, 2023 in forum: Recruitment into current ME/CFS research studies
  13. Dolphin
    Post

    Clinical effects of wasabi extract containing 6-MSITC on myalgic encephalomyelitis/chronic fatigue syndrome: an open-label trial 2022 Oka et al

    Free fulltext: https://link.springer.com/article/10.1186/s13030-023-00287-0 Ryota Nakajima, Masanobu Kanou, Masahiko Tokushima, Yoshitaka...
    Post by: Dolphin, Aug 26, 2023 in forum: ME/CFS research
  14. Dolphin
    Post

    Cerebrospinal fluid (CSF) proteomics

    Also Distinct cerebrospinal fluid proteomes differentiate post-treatment lyme disease from chronic fatigue syndrome Steven E Schutzer et al. PLoS...
    Post by: Dolphin, Aug 26, 2023 in forum: Neurological/cognitive/vision
  15. Dolphin
    Post

    Cerebrospinal fluid (CSF) proteomics

    There was this study: A Chronic Fatigue Syndrome - related proteome in human cerebrospinal fluid James N Baraniuk et al. BMC Neurol. 2005....
    Post by: Dolphin, Aug 26, 2023 in forum: Neurological/cognitive/vision
  16. Dolphin
    Post

    Trial Report Pattern of Post COVID Fatigue in Elderly Patients, 2023, Gaber (ME/CFS is also discussed)

    "Our data not only confirms the rarity of post COVID fatigue in subjects over 70 but also suggest that when fatigue occurs in that age group, it...
    Post by: Dolphin, Aug 26, 2023 in forum: Long Covid research
  17. Dolphin
    Thread

    Trial Report Pattern of Post COVID Fatigue in Elderly Patients, 2023, Gaber (ME/CFS is also discussed)

    [The author is or was "Clinical Lead for CFS/ME Service Wigan, Bolton & Bury (UK)"] Free fulltext...
    Thread by: Dolphin, Aug 26, 2023, 3 replies, in forum: Long Covid research
  18. Dolphin
    Thread

    Review Understanding mental fatigue and its detection: a comparative analysis of assessments and tools, 2023, Kunasegaran

    Free fulltext: https://peerj.com/articles/15744/ Kunasegaran K, Ismail AMH, Ramasamy S, Gnanou JV, Caszo BA, Chen PL. 2023. Understanding mental...
    Thread by: Dolphin, Aug 26, 2023, 3 replies, in forum: 'Conditions related to ME/CFS' news and research
  19. Dolphin
    Thread

    Miguel Bautista’s CFS Recovery ‘recovery jumpstart’

    An extract from an email from someone who wanted this program highlighted more (but not in a way to promote it): HIs name is Miguel Bautista. His...
    Thread by: Dolphin, Aug 25, 2023, 17 replies, in forum: Psychosomatic theories and treatments discussions
  20. Dolphin
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    This account did around 10 tweets on the conference.
    Post by: Dolphin, Aug 25, 2023 in forum: News from organisations
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