Interesting PG calls out physicians as patients and never reflects on his own LP conversion…
Good article by senior political reporter of Newsroom who seems more concerned about the Long Covid problem (and ME) than Primary Care, who think...
Good to see papers coming out on this, especially important to understand problems accessing health services (medical and mental health)....
I had just returned from a fun filled extended three year holiday/hardworking OE in the UK including very extensive travel (basically the whole...
No, not off the top of my head, but clinically that seems to be the case. The go low, go slow is an important prescribing guideline for...
Nothing. (I was going to get genetic testing to see what my “biological cell age” is but I have lived a full life, and expect to see it about 10...
I have heard Prof Tait (who is a biochemist) talking in conjunction with Dr Vallings (GP with special interest in ME). They have worked together...
I missed all the talks until late in the Symposium and joined as Tina Ngata zoomed in from Tarawhiti/East Coast. I have worked there so good...
I am not overly familiar with the large scale DNA database collection for ME overseas. I think known, but yet undiagnosed genetic disorders, may...
So just to clarify, according to the research theory and investigation, as yet published, this small amyloid-fibrin protein, that does not get...
ME Auckland, ME/CFS Support Kate Duder who has ME interviews a pwME (severe) and a newly diagnosed pwLC, 45 mins explaining difficulties getting...
Thanks, I am keen to see the result on how effective and safe it is and whether it will be a cost effective treatment for Aotearoa. I was...
For a general simplified overview: they are all inter-related with complex feedback systems. Often I use the term HPA (HP-adrenal) as medical...
Thanks @SNT Gatchaman, where are we up to on Amy Proul’s study on pwME and if they have microclots? She was going to start in January 2022 if I...
Another twitter report of significant deterioration in ME following apheresis, unclear exact details but asking other pwME to contact over harm...
I think the large scale genetic studies of pwME need to come out first. Will be interesting to see the correlation between personal and family...
@hellytheelephant Thanks for posting this, very well written, encapsulates so much and resonates for me on many levels.
Yes, totally get this, but insomnia is a brain disturbance from physical and mental health problems and I am also coming from a clinical and...
GP’s are very reluctant here to give anything but a short supply of Zopiclone as a lot of insomnia is short-term due to situational stressors and...
I have an unusual pattern to my sleep and ME, every autumn, even though my ME is stable, I will have a relapse. It’s annoying as often comes...
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