Several threads but there was one on outcome measures specifically where we talked about the logic behind objective plus subjective multiple...
That seems a good summary. A really big problem is that although NICE did not recommend GET it still recommends a 'management programme' without...
Yes, IiME had their last conference at Hinxton.
Well, actually, it has been lifted directly from our discussions here in 2017-18 - without apparently any recognition of that. If you look back...
Is there any mileage in pointing out to the commissioners that they are likely to be wasting a huge amount of money on multidisciplinary teams and...
It doesn't. It is just that the ordinary test is too crude to measure the tiny constant shift in CRP that indicates a risk of heart disease in...
The Beentjes study looked at BMI (reported in the second draft I think) and there was not much difference. But I think we may also have to...
I would echo Kitty's comment. And add that as a general rule something that might produce a useful benefit is always going to have the potential...
One thing that seems inappropriate to me is that it looks as if the tender is asking for bidders to be ready to provide a complete service...
The link doesn't work for me @Suffolkres . It is still all very opaque to me what is actually being proposed. I am here to give a view if it is...
I don't think pulse pressure is itself a problem. 93 is on the low side, which might be. Low pulse pressure can be a sign of a structural valve...
Yes, that is what it means- I was wondering what numbers you were referring to though? I am not aware that it is supposed to relate to any...
What do you mean by a narrow pulse pressure exactly?
It might do. Even for sleep disturbance we have a consensus that it is part of ME/CFS but do we have any data on how altered sleep patterns differ...
I wonder what people think of this. It acknowledges a need to provide a service for severe patients. But otherwise it looks very much like a...
I would be very wary of anecdotal evidence like this. An increased heart rate need not be evidence of Dysautonomia. It may be evidence of a...
My guess would be that the side effects are part of a general environmental intolerance problem that could be mediated by the hypothalamus (the...
An article in the Guardian today reports an actimetry study that links patterns of activity during the day to disease:...
My memory is that Newton said that she had made a decision not to continue working on ME/CFS because she could not get funding - maybe 3-4 years ago.
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