Thank you to everyone who has contributed to the discussion on S4ME's reply. I look forward to reading as soon as I am able. Apologies for my...
Have just tried to get a late ticket ( it's 1.50pm ) for above which starts at 2.30, but all tickets are sold out. If anyone watches, would be...
It might but I am still not sure what would be being measured. On using my therapeutic massage machine initially, I did have an unpleasant...
"Simulated discomfort Some patients with myalgic encephalomyelitis will be confined to their bed for several days simply after daring to walk to...
Chief Scientific Officer of Pfizer just interviewed- vaccine developed in Connecticut using volunteers from New York. He was smiling hugely and...
Cannot remember the detail but I think one of the TV interviews covered this- to do with almost all cases developing in the control group. EDIT:...
I hesitated before posting the above since it seems too good to be true despite the caveats of logistics, storage at low temperature etc but it's...
Merged thread Pfizer vaccine reported as 90% effective- "great day for science and humanity" SKY NEWS "Coronavirus: Pfizer COVID-19 vaccine...
I have written to my MP reminding him of the publication of the Nice guidelines tomorrow. With all that is happening in the world, I doubt if...
I am 'out'. I post repeatedly and stubbornly on fb about ME, never cfs, draw attention to research, advocacy etc. I get relatively little...
@arina83 Thank you for the link to the HEDGE study. I look forward to the finding of a genetic marker for hEDS so that there can be no disputing...
What an honest, raw, brave account. Feeling very moved. What a special man. So sorry at this news.
Well done @PhysiosforME. You are making a huge difference.
Epidemiologist from Zagreb on BBC news just announcing that levels in U.K. are accelerating, especially in south east. He is advocating more...
There has been a surge in cases in daughter's very large primary school in a deprived tier 1 area with a lower covid rate than national average....
And Germany.... https://www.bloomberg.com/news/articles/2020-10-28/germany-agrees-to-impose-toughest-restrictions-since-lockdown edit to add-...
Breathlessness has become a severe issue for me since about 2016, not so much in the earlier years of the illness. In fact in the several years...
A very significant symptom for me, that is breathlessness not air hunger. Too late to write now but I will try and get back to this thread in the...
No email so reregistered with link provided by Andy. Two emails within a minute with links to info about study but no link to a survey.
Attached is a survey sent out by Lipoedema UK requesting participation in a survey by University Hospital of Bruxelles on quality of life...
Separate names with a comma.
