@Jonathan Edwards Thank you for your reply. I do hear what you are saying and appreciate you engaging with the issue. It is difficult however,...
There are 13/14 types of Ehlers Danlos, most of which are very rare, and all of which except hypermobile Ehlers Danlos have a genetic marker....
@Jonathan Edwards I did not express myself very clearly so apologies. I should have said that rates of hypermobility are higher in those with...
[MEDIA] I came across this talk by Dr Karen Herbst which basically looks at the distinguishing features between lipoedema and Dercums. Lots of...
https://www.intechopen.com/books/adipose-tissue-an-update/lipedema-a-painful-adipose-tissue-disorder An article identifying lipoedema and Dercums...
Interesting especially in showing the systemic effects of hypermobility Ehlers Danlos, that it's not just hypermobile joints but can affect all...
I believe I have mast cell irritability, a doctor's diagnosis not mine. I am reluctant to call it a mast cell activation disorder because it seems...
It was one of a series of 10 articles posted in 2012 in a brochure to celebrate 10 years since the SMC was formed. I tried to describe this in...
Written but not posted earlier. Ran out of steam but I hope this makes sense. Do we know when this rubbish was posted? It's just the same old...
Thank you Adam. A great and important piece of work. I enjoyed rereading some of the references too. Am I right in remembering that it is 4...
Good to see you here @Indigophoton. I'm not up to reading the paper either. I do however try to limit how many things might be competing for my...
Overview of ehlers danlos and lipoedema [MEDIA] From about 20 minutes in , there is discussion of ehlers danlos (eta type 3 hypermobility) and...
Sending sympathy. I was diagnosed only 5 years ago in my 60s but, looking back, the signs were there. Now progressive -hate it. Another illness...
Done. My MP is Sir Ed Davey and I revised the ME Action letter to remind him of his statement in the WH debate in June 2018. He has also been very...
Thanks @Andy. We are spreading the word as requested. Looking forward to what emerges already. Keep well. edited: first sentence
Have signed up. Feeling very emotional today. Thank you to all who have worked on this both directly on the project and over the years in...
An earlier thread https://www.s4me.info/threads/ldn-seems-to-be-working.8936/ Edit: corrected thread
Thanks @Gecko
Thank you @adambeyoncelowe
Is there any way of answering this page by page, and storing answers in between sessions? 59 questions is an awful lot to answer in one go. I am...
Separate names with a comma.
