“Wanted to highlight this bit Derya Unutmaz said: The last comment I can make is that in the past several months, we have tried to engage the...
I sincerely admire the clarity of your letters @Trish . Thank you for the work you put into them. I look forward to reading a response.
I meant the intramural study @Wilhelmina Jenkins. I’m glad it is making progress.
I don’t mean I ‘like’ this. Nobody could like it. Just a disaster. And the NIH study is still not recruiting? Unless it’s changed recently. What...
Good wishes @dangermouse. Thinking of you.
Thanks @Dolphin for posting the review paper. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3229648/ I haven’t had the energy to read it in depth...
Thank you @dave30th for all you are doing. It isn’t easy to tackle the eminences of the ME world and the Establishment that has consistently...
A quick google has thrown up the following study ( as an example) which uses a qualitative phenomenological approach to the experience of a group...
My social science background comes into play here which of course does not include psychology. If my brain were present I could write more but I...
I was thinking about qualitative/ interpretive/ phenomenological research. Certainly not research done by psychologists. It would be systematic...
Moderator note: The first 8 posts on this thread have been moved from here. ____________________________________ Is there any systematic research...
Signed but signatures still low at about 4346 . What is the reason it is attracting so few signatures?
I think this is one way in which individuals with ME could do more. I think there is a limit to what group campaigns and especially template...
I too am disappointed to see Nicky Morgan is standing down. She has been very supportive of pwme in the Parliamentary efforts of the last year or...
Tried my pulsox for 10 minutes this morning. O2 level varied between 91 and a brief 95, mostly settling at 92. Lung tests earlier had shown no...
It’s good to hear that your CT scan was clear @arewenearlythereyet. That must have relieved your mind considerably but sorry to hear you are still...
Unfortunately I was too ill to make the journey this weekend. Bedbound while waiting for some scans. I look forward to reading how it went....
@NelliePledge - of course.
My memory has become very significantly worse this year but I can’t remember an example to give you. I only realised how different it is when, in...
There is discussion on the other forum about the metabolic trap for anyone wishing to pursue it....
Separate names with a comma.