Response yesterday by ME Patient Foundation MEPF Response to Psychology Today Article The Dark Side of Social Media Activism in Science,...
Thank you John. Your persistence defies belief. Thank you for doing this.
I think it said in the article that the Baroness’s father was a cardiologist. She was home educated because of her health and then went to Oxford....
https://www.meassociation.org.uk/2019/07/the-times-baroness-blackwood-why-i-feinted-in-the-house-of-lords-08-july-2019/ There was an article in...
“ ”@Trish Thanks for doing this Trish. It needed doing in order to get a clear picture. When Tovey indicated last Oct that the review would be...
So am I @NelliePledge. Very useful
Welcome @PhysiosforME. Look forward to hearing your plans. Glad to see you here.
Just had a response. It’s definitely biomedical as I knew it would be and she will try and get on here very soon.
Have sent a message. It will be “onside” and very helpful.
I have not seen this tweet but a physio in a local ME group I belong to has written of a few of them getting together. I’ll send her this link.
Somewhere in this correspondence ( scanned quickly), Tovey refers to discussing this issue with ‘ Carla’, the new editor in chief. Since nothing...
Thanks @Sly Saint .
New Editor- in - Chief has been in place since June 1st? Am I right? What is her view? ( Hope I’ve remembered correctly that it is a ‘she’. Don’t...
Item 4.2 about psychological interventions is very concerning. 4.2 Dr Charles Shepherd said that he and Dr Willy Weir were on the NICE Guideline...
Ron Davis talks about ME patients having the symptoms of Mast Cell Activation in the piece above, and that they can be treated. Is anyone having...
@dangermouse I know how difficult it can be to leave the house for a medical appointment when feeling ill. That has happened to me twice...
Really odd @arewenearlythereyet . My memory is better than Mr B’s despite my issue that hasn’t recurred. So he decided to consult our GP who...
About 30 mins long. Really good discussion. Wise. Seems to summarise the history of ME. Felt quite emotional but that may have been me today.
Has the new editor in chief made any statements about this? Where is she based? I think the job advert said it didn’t necessarily have to be London.
Is this the new category of EDS that has been diagnosed making 14 categories in total? All except one, hEDS, have genetic markers, and I was told...
Separate names with a comma.
